September 29, 2023

WATCH: Advocating for Access: Insurance 101 (Webinar Recording)

Navigating insurance can be daunting – from decoding acronyms, to understanding the types of health plans, and more. During September’s Advocating for Access webinar, the PPMD and Little Hercules Foundation teams dug into some of…

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September 19, 2023

RSV, COVID, and Flu – oh my!

As school has started and the winter season approaches, the increase in respiratory viruses is soon to come. This year it’s important to protect yourself, your children and your family from all respiratory viruses, but…

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August 1, 2023

PPMD Gathers Experts for Adult Care & Transition Meeting Ahead of 2023 Annual Conference

Duchenne & Becker Adult Care & Transition Meeting Recap Ahead of PPMD’s 2023 Annual Conference in June, around 40 healthcare professionals from around the country gathered for a one-day meeting to discuss an important topic…

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July 31, 2023

New Clinical Experiences Survey

PPMD strives to ensure that every patient with Duchenne and Becker muscular dystrophy receives the best care possible. An important part of PPMD’s certification and continued maintenance of Duchenne Care Centers around the country is…

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June 6, 2023

New Duchenne School Resources

Even though school is officially out for summer, it’s never too early to start planning for next year. We are here to help navigate this Duchenne journey together and connect you with any additional resources…

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November 1, 2021

November is National Family Caregivers Month

To be fair, I find it a little odd that we celebrate caregivers for only a single month, when caregivers are caring for their loved ones every single day of every single month. In this…

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August 26, 2020

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help…

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August 6, 2020

NEW! Download PPMD’s Updated Education Matters Guides for Back-To-School

As the beginning of the school year quickly approaches, PPMD is working to support your family and help you plan for a successful classroom experience, whether it be in-person or virtual. We are thrilled to…

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June 17, 2020

Download PPMD’s New Care Checklists

PPMD knows that keeping track of all elements of your/your child’s care can be overwhelming and confusing. For this reason, we have created a series of care checklists for families to track and understand recommended…

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March 30, 2020

Physical Therapy for Your Lungs

The lungs of people living with Duchenne are not directly affected by the lack of dystrophin in Duchenne. However, the muscles responsible for breathing, including the diaphragm and the intercostal muscles (the tiny muscles between…

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