What you need to know in the first 3 months

The first three months following the Duchenne diagnosis can be both devastating and overwhelming as you try and learn everything you can. We will do everything we can to guide your journey.

Learn about Duchenne & Becker

Duchenne/Becker muscular dystrophy (Duchenne) is the most common muscular dystrophy in children. It is a progressive disorder that causes muscles to become weaker over time until it affects the whole body. Duchenne is not contagious. About one out of every 5,000 boys has Duchenne, and about 20,000 babies worldwide are born with it each year. Duchenne mostly affects boys and reaches across all races and cultures.

Get Support

First, you are not alone. Though Duchenne is categorized as “rare” there is a huge active global community at your fingertips fighting day and night to end Duchenne. PPMD is here to connect you to resources for support.

Get Care

The care of a person living with Duchenne must be comprehensive, caring for many parts of the body. PPMD is dedicated to ensuring that all families have access to optimal Duchenne care and is here to provide the critical information and tools you need.

Connect to Clinical Trials

It is an incredibly exciting time in the Duchenne community with so many potential therapies in the pipeline. Learn about actively recruiting clinical trials and research studies

Join the Community

Register with PPMD to be kept up to date and be connected with our global fight to end Duchenne. We use this registration to send out newsletters and inform you about our efforts in research, advocacy, and care.