Ways to Connect

Find a local Connect Group

Online interactions are great, but nothing can replace in-person connections with other families living with Duchenne. PPMD has local Connect groups all over the country for this very reason.

Previously known as FACES, these groups serve many functions, but primarily exist to help you along this journey.  Reaching out to your local group will let them know that you are there. Maybe you don’t want anything, or maybe you just want to “listen” for awhile — that’s ok.

No one needs to go through this experience alone.  Finding one or two families to connect with will help you to know that there is hope and that you have support whenever you need it.

Join the Community Forum

The PPMD Community Forum allows families all over the world to connect with each other to chat, organize, and share stories, news, and information.

Download our Mobile App

PPMD’s mobile app puts emergency care information, critical research news, and advocacy alerts at your fingertips, instantaneously.