PPMD’s Decode Duchenne Program

PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne and Becker muscular dystrophy community. Participants must be living in the United States or Canada.

Genetic testing is performed at our designated laboratory, Revvity Omics. PPMD’s certified genetic counselors specialize in Duchenne and Becker muscular dystrophy and are available to both healthcare providers and families at any point during the testing process.

For Providers

Get started by selecting one of two options:

Diagnostic Testing > Carrier or Asymptomatic Testing >

For Patients

Get started by downloading this flyer to take to your local healthcare provider so they can order genetic testing for you or your loved one. Click here for the Spanish version.

Learn more by reading the Frequently Asked Questions for Patients.


Contact a Decode Duchenne Genetic Counselor >




Decode Duchenne is administered by Parent Project Muscular Dystrophy and The Duchenne Registry. Decode Duchenne is presented by Sarepta Therapeutics, Founding Partner; and supported by NS Pharma. Click here to review PPMD’s policy on corporate support.

Presented by Founding Partner

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