Care. It’s at the heart of everything Parent Project Muscular Dystrophy does. We strive to ensure that people living with Duchenne are living longer, stronger lives, by helping you access expert healthcare providers, a comprehensive team of sub-specialists, and cutting edge treatments.

In this section, the PPMD team has consulted experts and compiled critical information to arm you with the tools you need to receive optimal care. Whether you are the person living with Duchenne, a care provider, a Duchenne carrier, or a clinician, explore the effects of Duchenne by area and the progression of the disease by age and stage. Knowledge is power in the fight to end Duchenne.

Our Impact


Added to average lifespan due to PPMD-led advances in care


Clinics awarded certification across the US as of June 2019


Care providers in PPMD network of certified centers


of identifying & addressing gaps in care through workshops & consensus meetings

Our Impact in Care

Find a Certified Duchenne Care Center

PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services that have been established in the Duchenne Care Guidelines. All Certified Duchenne Care Centers have met the requirements for, and agree to provide, optimal standardized care and services.

Find a certified center

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