November 19, 2019

Santhera shares SIDEROS clinical trial and BreatheDMD program update

Santhera Therapeutics shared a community letter today announcing that the company has decided to suspend enrolling new participants in the BreatheDMD expanded access program (EAP) until their SIDEROS clinical trial is fully enrolled. The SIDEROS…

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October 22, 2019

Reveragen Biopharma Receives NIH Ethics Grant to Return Data to Participants in Vamorolone Clinical Trials

The National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH) has awarded an ethics research grant to ReveraGen BioPharma to return patient-level and aggregate data to Duchenne patients and…

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October 9, 2019

2019 World Muscle Society Update – Day 4

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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October 7, 2019

Santhera Announces Presentation by ReveraGen of Positive 18-Month Data with Vamorolone in Duchenne

Santhera Pharmaceuticals has announced the presentation of data showing continued improvement of muscle function and improved tolerability compared with corticosteroids of 18-month vamorolone treatment in Duchenne. PPMD was an earlier funder of this important research…

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October 7, 2019

2019 World Muscle Society Update – Days 2 & 3

This week, PPMD’s Abby Bronson, SVP of Research Strategy and Eric Camino, PhD, Director of Research and Clinical Innovation are attending the annual World Muscle Society (WMS) meeting, this year in Copenhagen, Denmark. Below, Abby…

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September 25, 2019

Santhera Shares Fall 2019 Community Update

Santhera has shared a community update on the company’s Duchenne drug development programs and their partnership with ReveraGen. Click here to download.

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August 27, 2019

Santhera Announces Publication by ReveraGen of Positive Phase IIa-Extension Study Results with Vamorolone

A publication in the journal Neurology was released today describing efficacy studies of vamorolone, a treatment option being evaluated as a potentially safer alternative to corticosteroids, in people with Duchenne. PPMD is pleased to learn…

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July 12, 2019

2019 #PPMDConference Presentations

2019 PPMD Annual Conference Resources & Recordings JUNE 27 – JUNE 29, 2019 | Orlando, Florida Thank you doesn’t begin to express our gratitude to everyone who participated in our 25th Annual Conference in Orlando,…

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February 12, 2019

WATCH: Vamorolone Clinical Trials in Duchenne – Webinar Recording

On January 30, 2019, ReveraGen joined Parent Project Muscular Dystrophy for a webinar to provide the community with an overview of the vamorolone drug development program for Duchenne, including results showing improved muscle function in…

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January 8, 2019

Meeting Update: Inflammation in Duchenne

Last month, PPMD convened a day and half meeting – Inflammation in Duchenne: Current and New Treatment Strategies – to bring academic and clinical researchers together to discuss advancements that could be made by treating…

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