Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
JoinDuring this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 (Coronavirus) Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
Read the latest
Though we can’t connect in person this year, there was no way PPMD could let the summer go without hosting our Annual Conference. So this year, we are gathering virtually! From Wednesday, July 22 - Saturday, July 25, we will be offering the kind of robust, informative agenda you have come to expect from PPMD over the last 25 years.
Register
PPMD’s Race to End Duchenne teams participate in major marathons and half marathons around the country, inspiring others to join.
Check out our calendar of upcoming events
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a care center
In response to the pandemic, Parent Project Muscular Dystrophy continues to provide resources and information about COVID-19 as it relates to Duchenne. But our work goes beyond this virus – we have a mission to fulfill and a momentum that we must maintain. Now is the time to support PPMD. Make your gift today.
