Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
JoinDuring this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 (Coronavirus) Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
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Register today for PPMD's Virtual Advocacy Conference on March 10, 2021. Never advocated before? No problem! With this year's virtual format, now is the perfect time to dip your toe into the advocacy waters!
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When you join the Race to End Duchenne you are supporting PPMD’s vital work in advancing research, care, and advocacy to help those with Duchenne live longer, stronger lives.
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Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
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