Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
JoinDuring this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 (Coronavirus) Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
Read the latest
PPMD has always been about community, and during these uncertain times, we know our families need community more than ever. That’s why we are excited to announce our first ever national virtual event – #DuchenneDaily20!
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PPMD’s Race to End Duchenne teams participate in major marathons and half marathons around the country, inspiring others to join.
Check out our calendar of upcoming events
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a care center
During this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 (Coronavirus) Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
Click here for the latest
