Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
JoinPPMD’s Race to End Duchenne teams participate in major marathons and half marathons around the country, inspiring others to join.
Check out our calendar of upcoming events
Fund the fight to end Duchenne your way and have fun encouraging your community to support you! PPMD will help guide you and give you all the tools you'll need to be successful in the fight to end Duchenne.
Get started
PPMD's Decode Duchenne program provides free genetic testing, interpretation, and counseling to people with Duchenne or Becker muscular dystrophy who have been unable to access genetic testing due to financial barriers.
Learn more about free genetic testing
The End Duchenne Tour brings updates on research, advocacy, and care to cities across the country, featuring a roster of leading experts in the Duchenne space.
Join us at our next stop
The heart is a muscle too. We cannot truly end Duchenne until we figure out a way to save the heart in the process.
Help us raise $550,000 to advance critical cardiac-focused research projects.
Your gift will be matched–dollar for dollar–until 12/31!
