Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
JoinThe PPMD Annual Conference brings together families, patients, clinicians, researchers, and industry partners in one profoundly impactful meeting.
Join us in Orlando, FL
PPMD’s Race to End Duchenne teams participate in major marathons and half marathons around the country, inspiring others to join.
Check out our calendar of upcoming events
Fund the fight to end Duchenne your way and have fun encouraging your community to support you! PPMD will help guide you and give you all the tools you'll need to be successful in the fight to end Duchenne.
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The End Duchenne Tour brings updates on research, advocacy, and care to cities across the country, featuring a roster of leading experts in the Duchenne space.
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