Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
Join The RegistryThe Duchenne journey is complex, but PPMD is here for you. Schedule a meeting with an expert member of the PPMD team for personalized support and resources.
Schedule a meeting
Race to End Duchenne is Parent Project Muscular Dystrophy’s signature program that raises funds to support our mission to end Duchenne muscular dystrophy, a fatal genetic disorder that slowly robs people of their muscle strength.
Join the Race
Parent Project Muscular Dystrophy’s mission is to end Duchenne but we need YOU! Have a great idea for a fundraiser? PPMD is here to help you every step of the way.
DIY Fundraising
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a Care Center
Give before midnight on 12/31 to help launch PPMD’s Dystrophinopathy Clinical Research Network.
New Reality. New Research.
