Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
Join The RegistryWe can’t be together in person this year, but we can still do something together to help end Duchenne. Choose to run/walk/roll or bike your race, pick your own start time and your own race course. We’ll provide a kit so you can create your very own finish line fun!
Join the Race Into Summer
Though we can’t connect in person, we will once again be gathering virtually for this year’s Annual Conference! Join us June 23 – June 26 for four days of information, education, conversation, and community!
Register
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a Care Center
During this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
Read the latest
