A Short List of Things to Know & Do Now

  1. Register with PPMD.
  2. Find a neuromuscular provider who knows how to care for patients living with Duchenne (more information: Get Care).
  3. Talk to your child’s healthcare provider about physical activity. Too much of some types of strenuous activity are bad for your child’s muscles (more information: Get Care).
  4. Ask your neuromuscular provider or physical therapist about stretching, and learn how to stretch your child’s muscles appropriately (more information: Get Care).
  5. If your child is getting physical therapy (PT), ask the therapist to contact PPMD for specific PT recommendations (more information: Get Care).
  6. Ask about the risks and benefits of starting corticosteroids (most children start before age 5yo)(more information: Get Care)
  7. Duchenne is a progressive disease (meaning that it gets worse over time), but it gets worse very, very SLOWLY and patients progress at different rates (more information: Get Care).
  8. Most parents and families are able to adapt to living with Duchenne. It’s not easy and it takes time, but we can help you get there (more information: Get Support).