A Short List of Things to Know & Do Now
- Register with PPMD to stay up to date with care & research, educational webinars, resources, community events and more.
- Find a neuromuscular care center with a multidisciplinary team who knows how to care for patients living with Duchenne & Becker.
- Ask your neuromuscular provider or physical therapist about stretching and physical activity. Too much of some types of strenuous activity are bad for your child’s muscles.
- Discuss the benefits and side effects of starting corticosteroids
- Ask your neuromuscular provider if there are approved therapies or clinical trials your child may be eligible for, and discuss the risks and benefits.
- Download the Newly Diagnosed Guide for information on genetics, care, trials, and more.
- Explore support services at school through an IEP or 504 plan.
- Take a moment to pause and breathe. This diagnosis is overwhelming and it can be difficult to know where to start and how to absorb all the new information. You are not alone in this journey, PPMD is here to come alongside you every step of the way.
Learn more in our Get Care and Get Support sections or reach out to careteam@parentprojectmd.org with any questions.
