Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
Join The RegistryOn Saturday, September 24, AFCA coaches nationwide will once again roll up their sleeves and proudly get involved for the 15th season of Coach To Cure MD. But we still need YOU to join our team to help us accomplish our mission!
Tackle Duchenne
Race to End Duchenne is Parent Project Muscular Dystrophy’s signature program that raises funds to support our mission to end Duchenne muscular dystrophy, a fatal genetic disorder that slowly robs people of their muscle strength.
Join the Race
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a Care Center
During this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
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