Duchenne is a fatal genetic disorder that slowly robs people of their muscle strength. Parent Project Muscular Dystrophy fights every single battle necessary to end Duchenne.
We demand optimal care standards and ensure every family has access to expert healthcare providers, cutting edge treatments, and a community of support. We invest deeply in treatments for this generation of Duchenne patients and in research that will benefit future generations. Our advocacy efforts have secured hundreds of millions of dollars in funding and won two FDA approvals.
Everything we do—and everything we have done since our founding in 1994—helps those with Duchenne live longer, stronger lives. We will not rest until we end Duchenne for every single person affected by the disease.
During this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 (Coronavirus) Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
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