Each year nearly 500 families from around the world gather at PPMD’s Annual Conference to learn the latest progress in the fight to end Duchenne and connect with leading experts. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.
End Duchenne Tour
Combining each of the pillars that make up PPMD’s mission, the End Duchenne Tour brings updates on research, advocacy, and care to families across the country, featuring a roster of leading experts in the Duchenne space. This is your opportunity to interact with vetted leaders in Duchenne, connect with local families on the same journey, and, when possible, explore your area Certified Duchenne Care Center. All meetings are free and kids are welcome to attend and participate in PPMD’s Kids Track.
The Power of Us Summit Series
Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize just how deeply every family member is affected by a Duchenne diagnosis. This year, PPMD is introducing The Power of Us Summit Series, a series of mental wellness retreats bringing together members of our community to discuss topics related to mental health and family relationships, with the goal of developing tools and resources to help us enhance daily life.
Held in the first quarter of each year, PPMD’s Advocacy Conference is the only officially organized gathering on Capitol Hill for the Duchenne community. Over the course of three days, scheduled visits on Capitol Hill are arranged for all attendees to meet with the offices of their Congressional members and tell their stories. People with Duchenne and their families use their voice to ensure policy makers understand the urgency and need for federal focus and funding on Duchenne care and research.
See all Events
There’s no substitute for human contact. Join PPMD and other families like your own at fundraising events, marathon races, and meetings. See our full calendar list of events.