Each year nearly 500 families from around the world gather at PPMD’s Annual Conference to learn the latest progress in the fight to end Duchenne and connect with leading experts. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.
PPMD Together is a regional meeting series designed to emphasize connection, address quality of life issues, and provide insights into Duchenne care. These gatherings will offer us an opportunity to reflect on the progress achieved over the past three decades and the work we will continue – together – as we fight for every future. The meetings will also provide an opportunity for families to interact and learn from one another and other members of the community including industry partners, care providers, and advocates.
Held in the first quarter of each year, PPMD’s Advocacy Conference is the only officially organized gathering on Capitol Hill for the Duchenne community. Over the course of three days, scheduled visits on Capitol Hill are arranged for all attendees to meet with the offices of their Congressional members and tell their stories. People with Duchenne and their families use their voice to ensure policy makers understand the urgency and need for federal focus and funding on Duchenne care and research.
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There’s no substitute for human contact. Join PPMD and other families like your own at fundraising events, marathon races, and meetings. See our full calendar list of events.