PPMD COVID-19 (Coronavirus) Information Center

We recognize that as the COVID-19 (coronavirus) pandemic continues to evolve and new cases are diagnosed in the US, concerns surrounding infection and prevention measures continue to grow as well. We have created this COVID-19 resource section to help you and your family navigate this global crisis, including answers to your most pressing questions to fun family activities to help you get through long days (and nights) at home.

General Resources

For the most up-to-date information on COVID-19, please refer to the CDC’s website.

COVID-19 Recommendations for the Duchenne Community

PPMD is in contact with the Centers for Disease Control (CDC) and monitoring for any specific recommendations pertinent to the Duchenne population. PPMD also continues to consult with physicians from many of our Certified Duchenne Care Centers to determine recommendations specific to the Duchenne population. Please bookmark this page and check back regularly as new information and resources become available.

Recommendations for the Duchenne Community >

Webinars

PPMD is providing regular webinars to address some of the most critical topics in our community during this crisis, as well as some fun life hacks to get you and your family through this unprecedented time. Watch webinars you might have missed and join us for our upcoming programs.

Webinars >

Updates on Duchenne Clinical Trials/ Approved Drugs and COVID-19

As more families begin to self-quarantine, work & school from home, and drastically change day-to-day routines, questions are arising about what it means if you or your child are receiving medication or treatments from a specific company or participating in a clinical trial. PPMD has reached out to our industry partners and asked for updates. We will continue to update this list as more information becomes available.

More Information >

Resources from PPMD’s Certified Duchenne Care Centers

PPMD continues to turn to our incredible network of Certified Duchenne Care Centers for their expertise on dealing with COVID-19 as it relates to Duchenne specifically. Some of those centers have provided us with resources we think you and your family may find helpful.

Resources >

Family Activities

There is nothing better than quality family time, but as much as we all love each other, as we look at potentially weeks of self-quarantining, the ideas may start to dry up. Luckily, none of us are alone and there are a number of fun, free online resources for the entire family – from virtual tours of zoos and museums, to concerts and opera, to books and educational tools that will make family time that much more enjoyable.

And once you go through these ideas, create your own and share them with PPMD!

Family Activity Ideas >

Duchenne Daily 20

Between now and Friday, April 24, commit to doing something active for 20 minutes a day while raising much-needed funds to support PPMD’s mission – because Duchenne does not stop for a virus! As events and gatherings around the country are being cancelled or postponed, we recognize that it’s still critical for our community to stay active and connected while still taking action to help end Duchenne. That’s why we’ve created a virtual event – DuchenneDaily20.

Set up a fundraising page and ask your friends, family and neighbors to support your effort to get moving. From a dance party in your living room, to balloon volleyball, to a walk/ride around your neighborhood, there’s something every individual and family can do to keep active and keep our momentum going in the fight to end Duchenne. On Friday, April 24, we’ll do a special community-wide activity at a designated time – because we’re all in this together!

DuchenneDaily20 >