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PPMD’s 2020 Virtual Annual Conference Agenda – Now Available!

PPMD’s 2020 Virtual Annual Conference Agenda – Now Available! PPMD is excited to unveil our full agenda for the 2020 Virtual #PPMDConference, July 22-25! This summer continues to be an unprecedented time for our global community,…

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WATCH: Family Friday – When You’re a Carrier

Family Friday: When You’re a Carrier Learning that you are a female carrier of Duchenne can be shocking, overwhelming, and confusing. During our June 26, 2020 Family Friday on Facebook Live, we were joined by…

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End Duchenne Tour 2020: Virtual Tour Stop in Long Island

End Duchenne Tour 2020: Virtual Tour Stop in Long Island On the morning of May 30, PPMD hosted our 4th End Duchenne Tour Stop of 2020. This gathering marked our 3rd iteration of our virtual…

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WATCH: Family Friday – Navigating Your Neuromuscular Team

Family Friday: Navigating Your Neuromuscular Team For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss…

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WATCH: Family Friday – Advocating for Yourself in Research

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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Resources for Adjusting to a New Diagnosis of Duchenne

No one is prepared to receive the diagnosis of Duchenne. Most often, parents and caregivers have no prior knowledge of the disease, and information online can be very overwhelming. PPMD has developed a wealth of…

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WATCH: Family Friday – Reflecting on Adjusting to a New Diagnosis

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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Register Today for PPMD’s 2020 Annual Conference – Virtual Edition!

Register Today for PPMD’s 2020 Annual Conference – Virtual Edition! Registration is now open for PPMD’s 2020 Virtual Annual Conference! This is an extraordinary time for our global community, as we slowly begin re-emerging from the…

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WATCH: Family Friday – End of the School Year & Looking Ahead

Family Friday: End of the School Year & Looking Ahead For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching…

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Celebrate the Class of 2020!

When this school year started, none of us could have imagined how it would end. The Class of 2020 has faced challenges, setbacks, and heartbreaks like no other class in recent history. But we have…

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