September 11, 2023

Duchenne Action Month: Ways to get involved with PPMD

We know that no one person, company, or organization will end Duchenne. That’s why we are grateful to all of our collaborators – individuals, organizations, and industry partners – who, by joining forces with PPMD,…

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August 29, 2023

Breaking barriers together, this Duchenne Action Month and every day

On September 7, we will once again join forces with Duchenne and Becker organizations, families, partners, and all those like minded individuals around the globe to commemorate World Duchenne Awareness Day. This year we acknowledge…

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August 10, 2023

A Story of Firsts

On a sunny day in June of 1984, the word “Duchenne” first entered my life. “Go home and love them.” Well intentioned advice from doctors who could offer no hope. Could direct us to little…

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August 2, 2023

PPMD Publishes 15 Year Registry Report 

PPMD is excited to announce the release of the 15 Year Registry Report. This report is the culmination of data provided by registrants in The Duchenne Registry, as well as collaborative work with expert clinicians…

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July 2, 2023

Catch up on what’s happening at PPMD’s 2023 Annual Conference: Day 3

The third and final day of PPMD’s 2023 Annual Conference kicked off with the much-anticipated Gene Therapy Town Hall. Buddy Cassidy opened the session by sharing his experience as a Patient Representative for the May…

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July 1, 2023

Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 2

If you are here at PPMD’s Annual Conference this year, you’ve likely seen a man with a camera running around snapping pictures. Rick Guidotti, photographer and Founder & CEO of Positive Exposure, delivered keynote remarks…

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June 30, 2023

Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 1

This year’s  Annual Conference brings together more than 1,000 families, researchers, clinicians, and industry partners from around the world for three days of informative and interactive sessions featuring the latest news in research, clinical trials,…

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June 23, 2023

PAAC Travel Tips

Anyone living with Duchenne muscular dystrophy knows that there are extra steps to EVERYTHING. Traveling with medical equipment requires planning and organization. PPMD’s Adult Advisory Committee (PAAC) has put together several resources with tips that…

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June 21, 2023

Thanks to you PPMD continues forward in all areas of support

Thanks to the commitment and generosity of each of you, Parent Project Muscular Dystrophy will invest more than $13 million this year into key programs and strategies to continue to effectively move the Duchenne landscape…

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June 13, 2023

Over 1,000 Free Carrier Tests Performed through PPMD’s Decode Duchenne Program!

We are thrilled to announce a new milestone achieved in the Decode Duchenne genetic testing program. We recently reached 1,000 carrier tests performed! This means that over 1,000 women have received free carrier testing through…

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