January 15, 2019

Relive the Magic from the Disney Marathon Weekend

Four days of races, 48.6 miles, over $400,000 raised…plus new friends made and countless memories created – it was an amazing Walt Disney World Marathon Weekend for our entire Race to End Duchenne team! From…

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January 3, 2019

Because of your heart — WE DID IT!

For the last few weeks, PPMD has asked you to consider supporting the expansion of our Cardiac Initiative so that we can ensure potential Duchenne treatments support heart health. We set our most ambitious fundraising…

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December 28, 2018

We’re fighting to save the heart — join us

The Friar family is made up of fighters. We’re very nice people, don’t get me wrong! But when faced with adversity or challenges, we fight back. As a family. When our oldest son Kevin was…

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December 25, 2018

The heart of ending Duchenne

Just more than a year ago, I knew little about Duchenne muscular dystrophy and had never heard of PPMD. So much has changed since the day when our then 4-year-old grandson, Henry, was diagnosed. Today,…

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December 18, 2018

A strong heart — is more time with my family

I hope this note finds you and your family enjoying the holiday season! I am a 41-year-old with Becker muscular dystrophy. Until recently, I served on PPMD’s Adult Advisory Committee (PAAC), and I’m extraordinarily proud…

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December 18, 2018

Keep hearts strong — all gifts doubled!

If you’re part of the Duchenne community, you have likely seen parents share updates from their child’s cardiac appointment. The anxiety of these appointments can be incredible — stability at a doctor’s appointment when you…

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December 17, 2018

End Duchenne Tour Recap: Cincinnati, OH

PPMD headed to Cincinnati, OH for our End Duchenne Tour stop on November 17, 2018. Many families and members of the Duchenne community came together to learn about the latest information and resources for Duchenne families. PPMD…

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December 10, 2018

Your gift to critical cardiac research will be matched!

When PPMD started in 1994, research to treat Duchenne muscular dystrophy was virtually nonexistent. Nearly 25 years later, we have a clinical trial pipeline full of possibility with over 25 active trials, 30+ companies, and…

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November 30, 2018

Support heart health–all gifts matched!

For the last two years, you have helped support PPMD’s Gene Therapy Initiative and because of your support, we are seeing real results, real potential, real hope. But with all the progress we have made…

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November 29, 2018

End Duchenne Tour Recap: Palo Alto, CA

PPMD headed to Palo Alto, CA for our End Duchenne Tour stop on November 3, 2018. Many families and members of the Duchenne community came together to learn about the latest information and resources for Duchenne families….

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