December 11, 2024

Advance the Research Evolution: Introducing PPMD’s Dystrophinopathy Clinical Research Network

In 1984, the word “Duchenne” entered my world. The progress we have made since then is astounding. For decades, we have united in our unwavering commitment to end Duchenne, and with recent achievements in this…

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December 6, 2024

Catch up on PPMD Together: Virtual Edition – A Gathering of Families for Connection, Support, and Growth

Last month, families from around the world came together for PPMD Together: Virtual Edition. This unique virtual gathering provided families a space to connect, share their experiences, and find support from one another as they…

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November 28, 2024

This Year, I Am Grateful For Our Journey Together

As I prepare for another holiday to begin, I am again overwhelmed with gratitude for the compassionate, resilient community we’ve built through PPMD. You are each an extension of my family, the family we have…

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November 26, 2024

Equitable Access in Clinical Trials—A Call for Action and Collaboration

Living with Duchenne and Becker presents unique challenges, especially for families from underserved or marginalized communities. Health disparities, delayed diagnoses, and limited access to care and clinical research create barriers that often result in diminished…

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November 20, 2024

PPMD Culminates 30th Anniversary with Celebratory “Investing in Every Future” Event

PPMD commemorated its 30th anniversary with the “Investing in Every Future” celebratory event on November 14, 2024, in New York City. With some 200 attendees, this meaningful gathering honored three decades of progress and the resilience…

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November 12, 2024

Calling All Adults with Duchenne & Becker: Join the 2025 PPMD Adult Advisory Committee

Have you been looking for a way to engage with the community more? Do you have a personal experience that you would like to share with the larger community or through federal and state advocacy…

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September 25, 2024

Catch Up on Our PPMD Together Event in Seattle, Washington

This past weekend, PPMD convened over 100 attendees at our PPMD Together event in Seattle, Washington. Families, individuals with Duchenne and Becker, clinicians, researchers, industry partners and local vendors came together for the 2 day…

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September 24, 2024

Thanks to You PPMD Continues Forward in All Areas of Support

As we celebrate PPMD’s Duchenne Action Month inspired by World Duchenne Awareness Day, we are filled with gratitude for the supporters who have made our work possible. We continue to celebrate PPMD’s 30th Anniversary year,…

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September 12, 2024

Watch the Recording: Advocating for A Successful School Year

Recently, PPMD’s Alexis Hazlett was joined by panelists Jodi Krause (Colorado Children’s Hospital), Jill Castle, and Patrick Moeschen to discuss advocating for your child throughout the school year. The speakers dove into the differences between…

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September 1, 2024

Raising Our Voices This Duchenne Action Month

PPMD is excited to join forces with fellow Duchenne-specific organizations from around the world to celebrate World Duchenne Awareness Day on September 7! This global initiative, spearheaded by the World Duchenne Organization, aims to raise…

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