February 16, 2021

Save the Date for PPMD’s Annual Conference: Virtual Edition – June 23-26, 2021

PPMD’s Annual Conference – Virtual Edition June 23-26, 2021 It’s hard to believe that we are still in this pandemic. We are getting closer to safer days ahead and we want our Duchenne and Becker…

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February 12, 2021

Meet the 2021 PPMD Adult Advisory Committee (PAAC)

PPMD is thrilled to announce the members of the 2021 PPMD Adult Advisory Committee (PAAC)! PAAC members serve at a leadership capacity to represent the teen and adult Duchenne and Becker community. Despite the inability…

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February 10, 2021

“See you on the Road”: PPMD’s End Duchenne Tour 2021 Stops

Stemming from our PPMD’s Connect Roundtables, PPMD’s End Duchenne Tour stops were formally established in 2015 as the Every Single One Tour. Tour stops are typically one-day long events, providing updates on the latest clinical…

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January 5, 2021

Because of You, We Can Unleash Breakthroughs

Thanks to your generosity, I am proud to announce that we reached our goal of $400,000 to fund PPMD’s Protein Mapping Project, making the formal launch of our Biomarkers Initiative a success! I am thankful…

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December 31, 2020

Give before midnight. Unlock breakthroughs.

I can’t remember ever looking forward to a new year as much as I am looking forward to 2021. Tonight, as we ring in this hopefully brighter and better new year, I will take a…

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December 30, 2020

Tomorrow is the last chance to double your gift

We’re almost there. Tomorrow at midnight we will ring in a new year, one we all hope will bring a slow return to normalcy, to being together again, and to embracing our loved ones. This…

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December 28, 2020

A Few Days Left to Unlock Answers

When you grow up with Duchenne, it’s all you really know. My diagnosis is a part of who I am. While sometimes that means I have to think a little differently about the way I…

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December 22, 2020

Our Chance to Predict Duchenne Progression

As I write this letter, I feel my breath catch thinking about our journey with Duchenne. Everyone’s Duchenne story is different, and ours has certainly been unique. As a toddler, my son Tommy was hospitalized…

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December 18, 2020

The Possibilities of Our Protein Mapping Project

This year has forced us all to take stock of our lives, all that we have and all that we’ve missed, it is why I can’t help being immensely grateful for our Duchenne community. I’m…

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December 11, 2020

Have Your Gift Matched to Unlock Data and Unleash Breakthroughs

This time of year, we are all looking for the perfect gift for our loved ones, but one size doesn’t fit all. This reminds me of Duchenne, where one size doesn’t fit all either. While…

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