Blog

2019 #PPMDConference Presentations

2019 PPMD Annual Conference Resources & Recordings JUNE 27 – JUNE 29, 2019 | Orlando, Florida Thank you doesn’t begin to express our gratitude to everyone who participated in our 25th Annual Conference in Orlando,…

Learn More

PPMD: Your Strength, Your Family

PPMD: Your Strength, Your Family I had no intention of being part of the Duchenne community this long. When we started PPMD in 1994, I naively thought we would have a cure and I would…

Learn More

Join the 2019 #PPMDConference Live Stream!

Next week we will descend on Orlando, Florida for PPMD’s 25thAnnual Conference! With our most expansive agenda to date, including presentations from dozens of researchers, clinicians, and industry partners, we wanted to make this year’s…

Learn More

Race Athlete Spotlight: Alison Joseph

When Alison Joseph’s two sons were diagnosed with Duchenne, she immediately felt moved to do something to help raise money and awareness. Alison, along with her husband William Small and 44 of their family members…

Learn More

PPMD’s 2019 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2019 Annual Conference in Orlando, Florida, June 26 – June 30, 2019! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

Learn More

End Duchenne Tour Recap: Portland, ME

PPMD had the opportunity to travel to Portland, ME on April 27 for our third End Duchenne Tour stop of 2019. We were joined by 14 local families, 11 of our industry partners, and 3…

Learn More

The Early Bird Rate for PPMD’s 2019 Annual Conference Ends Wednesday!

PPMD’S 2019 ANNUAL CONFERENCE JUNE 26 – JUNE 30, 2019 ORLANDO, FL Your last opportunity to join us at the 2019 PPMD Annual Conference at our Early Bird Registration Rate ends Wednesday, April 24! This…

Learn More

Race Athlete Spotlight: Enzo Figueres

Enzo Figueres is an avid mountain biker but will be participating in his first road bike tour this May – with his son in a bike trailer! – as part of the Race to End…

Learn More

Unionville Run For Our Sons 5K Celebrates 10-Year Anniversary

Saturday, April 6 marked the 10th Annual Unionville Run For Our Sons 5K – a local DIY Race event hosted by the Johnson family benefiting Parent Project Muscular Dystrophy (PPMD) and our fight to end…

Learn More

End Duchenne Tour Recap: Omaha, NE

PPMD had the opportunity to travel to Omaha, NE on March 30 for our second End Duchenne Tour stop of 2019. We were joined by over 50 people including 18 families, 9 industry partners, and 10…

Learn More

Join Our Mailing List