September 21, 2022

2022 End Duchenne Tour Recap: Detroit, MI

2022 End Duchenne Tour Recap: Detroit, MI For the fourth stop of PPMD’s 2022 End Duchenne Tour, we traveled to Detroit, MI. More than 40 families, clinicians, and sponsoring industry partners came together to hear…

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September 7, 2022

World Duchenne Awareness Day 2022: Stories of #WomenAndDuchenne

World Duchenne Awareness Day 2022: #WomenAndDuchenne Each year, World Duchenne Awareness Day highlights a special theme for further education. This year that theme is Women & Duchenne to raise awareness about females living with ‘dystrophinopathy’ (the spectrum of muscle…

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September 6, 2022

Dr. Mena Scavina: My Story as a Clinician #WomenAndDuchenne

World Duchenne Awareness Day 2022: #WomenAndDuchenne Each year, World Duchenne Awareness Day highlights a special theme for further education. This year that theme is Women & Duchenne to raise awareness about females living with ‘dystrophinopathy’ (the spectrum of muscle…

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September 6, 2022

Pat Furlong: My Story as a Mom, Finding the Power of ‘Us’ #WomenAndDuchenne

World Duchenne Awareness Day 2022: #WomenAndDuchenne Each year, World Duchenne Awareness Day highlights a special theme for further education. This year that theme is Women & Duchenne to raise awareness about females living with ‘dystrophinopathy’ (the spectrum of muscle…

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September 6, 2022

Mariana: My Story as a Carrier with Cardiac Concerns #WomenAndDuchenne

World Duchenne Awareness Day 2022: #WomenAndDuchenne Each year, World Duchenne Awareness Day highlights a special theme for further education. This year that theme is Women & Duchenne to raise awareness about females living with ‘dystrophinopathy’ (the spectrum of muscle…

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September 6, 2022

Deb: My Story as a Mom to Daughters Living with Duchenne #WomenAndDuchenne

World Duchenne Awareness Day 2022: #WomenAndDuchenne Each year, World Duchenne Awareness Day highlights a special theme for further education. This year that theme is Women & Duchenne to raise awareness about females living with ‘dystrophinopathy’ (the spectrum of muscle…

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August 24, 2022

Sign up today! Virtual Series-Global Walk 4 Duchenne

Sign up today for the Race to End Duchenne Virtual Series – Global Walk 4 Duchenne September 1 – September 30, 2022! Join the movement as we gather to bring awareness to Duchenne muscular dystrophy…

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August 16, 2022

2022 #PPMDConference Presentations

2022 PPMD Annual Conference Presentations JUNE 23-26, 2022 | Scottsdale, AZ Thank you to everyone who joined us for PPMD’s 2022 Annual Conference, whether you attended in person in Scottsdale, AZ, or virtually from anywhere…

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August 15, 2022

Celebrate 15 Years of Coach To Cure MD on September 24!

Celebrate 15 Years of Coach To Cure MD! Mark your calendars, get in the game, and help us kick off the 15th year of Coach To Cure MD on Saturday, September 24, 2022! In 2008,…

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August 1, 2022

Parent Project Muscular Dystrophy Announces Charity Partnership in Atlanta

Parent Project Muscular Dystrophy Announces Charity Partnership in Atlanta Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), has been chosen by Bodies Running Company as the…

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