Blog

September 16, 2019

PPMD Unveils Care Materials & Remote Tour Stop in SPANISH

Each year during Duchenne Action Month, PPMD reminds our families to download our comprehensive care materials, including critical emergency information. This information is especially important as kids head back to school to help educate school staff….

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September 10, 2019

Event Spotlight: Houston’s Coach To Cure MD

I have had so many people calling to ask “what can I do for Coach To Cure MD?” so I thought I would talk about our longest running Coach To Cure MD event in Houston…

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September 9, 2019

Decode Duchenne: Five Years of Free Genetic Testing

For over five years, PPMD has been proud to offer free genetic testing, counseling support and education through Decode Duchenne. This program is collaborative partnership between PPMD, industry partners Sarepta Therapeutics and PTC Therapeutics and…

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August 28, 2019

Join Our Team and Tackle Duchenne!

Coach To Cure MD, presented by Werner Ladder, is back for its 12th season ONE MONTH from today on September 28! Join our team and help #TackleDuchenne. Whether planning your own fundraising event or joining a…

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Race Athlete Spotlight: Tara Reynolds

Tara Reynolds has run the Aramco Houston Half Marathon with the Race to End Duchenne team for three years in a row, raising thousands of dollars. She does it all for her friend and inspiration,…

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2019 #PPMDConference Presentations

2019 PPMD Annual Conference Resources & Recordings JUNE 27 – JUNE 29, 2019 | Orlando, Florida Thank you doesn’t begin to express our gratitude to everyone who participated in our 25th Annual Conference in Orlando,…

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PPMD: Your Strength, Your Family

PPMD: Your Strength, Your Family I had no intention of being part of the Duchenne community this long. When we started PPMD in 1994, I naively thought we would have a cure and I would…

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Join the 2019 #PPMDConference Live Stream!

Next week we will descend on Orlando, Florida for PPMD’s 25thAnnual Conference! With our most expansive agenda to date, including presentations from dozens of researchers, clinicians, and industry partners, we wanted to make this year’s…

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Race Athlete Spotlight: Alison Joseph

When Alison Joseph’s two sons were diagnosed with Duchenne, she immediately felt moved to do something to help raise money and awareness. Alison, along with her husband William Small and 44 of their family members…

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PPMD’s 2019 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2019 Annual Conference in Orlando, Florida, June 26 – June 30, 2019! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

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