December 31, 2024

Double your impact in advancing the research evolution by the end of 2024

As the clock winds down on 2024 and we prepare to ring in the new year, I am awestruck by this community’s accomplishments and full of hope for the future. We have important work yet…

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December 31, 2024

Give before midnight TONIGHT to double your impact in developing PPMD’s DCRN

Happy New Year’s Eve! We’re almost there. At midnight we will ring in a new year, one that I hope will bring with it incredible experiences, happy memories, and lots of love. I am passionate…

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December 30, 2024

Together, let’s advance the research evolution

For my fellow adults living with Duchenne and Becker, today’s reality is vastly different from the one we were diagnosed into. We are living longer lives and feeling stronger while doing so. Many of us…

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December 23, 2024

Life is about time and timing when living with Duchenne

As a family living with Duchenne, time is everything to us. Decades of trials and research have paved the way for a new era, ushering in a reality with a growing landscape of both approved…

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December 19, 2024

Support PPMD’s commitment to moving the science further, faster

Greetings from Indiana! I write today letting you know that thanks to a generous pledge from a local family I know well, a $100,000 matching gift will be made to PPMD. That means every dollar…

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December 17, 2024

Your gift to PPMD is a commitment to accelerating progress

As a pediatric neurologist who takes care of children with neuromuscular diseases, I’ve had the privilege of witnessing first-hand the benefit many of our therapies can have for individuals living with Duchenne. Your belief in…

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December 11, 2024

Advance the Research Evolution: Introducing PPMD’s Dystrophinopathy Clinical Research Network

In 1984, the word “Duchenne” entered my world. The progress we have made since then is astounding. For decades, we have united in our unwavering commitment to end Duchenne, and with recent achievements in this…

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December 6, 2024

Catch up on PPMD Together: Virtual Edition – A Gathering of Families for Connection, Support, and Growth

Last month, families from around the world came together for PPMD Together: Virtual Edition. This unique virtual gathering provided families a space to connect, share their experiences, and find support from one another as they…

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November 28, 2024

This Year, I Am Grateful For Our Journey Together

As I prepare for another holiday to begin, I am again overwhelmed with gratitude for the compassionate, resilient community we’ve built through PPMD. You are each an extension of my family, the family we have…

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November 26, 2024

Equitable Access in Clinical Trials—A Call for Action and Collaboration

Living with Duchenne and Becker presents unique challenges, especially for families from underserved or marginalized communities. Health disparities, delayed diagnoses, and limited access to care and clinical research create barriers that often result in diminished…

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