Blog

Finding Belonging and Fostering Community

While no one asks to be part of this community, and entering the world of Duchenne and Becker can be overwhelming, you are not alone. During his keynote session at PPMD’s 30th Annual Conference, Brandon…

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Response to the July 29th STAT Article

A brief history: During and since 2016, there has been frustration in this community regarding drug development. Fast forward: PPMD strives for both accuracy and transparency in all information we release. We made the decision…

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PPMD’s 30th Annual Conference Session Recordings

Thank you to everyone who helped us celebrate three decades of progress, community, and resilience at PPMD’s 30th Annual Conference, whether you joined us in person in Orlando, or tuned in virtually! PPMD’s 30th Annual…

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PAAC Travel Tips

Anyone living with Duchenne muscular dystrophy knows that there are extra steps to EVERYTHING. Traveling with medical equipment requires planning and organization. PPMD’s Adult Advisory Committee (PAAC) has put together several resources with tips that…

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Summer fun

Summer Fun: Accessible Activities for All Ages and Interests

As the school year wraps up, we are all looking forward to a fun-filled summer. It can be overwhelming to plan outings and activities considering accessibility and necessary accommodations to keep everyone safe. Along…

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PPMD’s Pat Furlong Honored with ASGCT’s Sonia Skarlatos Public Service Award

PPMD is proud to share some exciting news: our very own President and CEO, Pat Furlong, has been named the 2024 recipient of the prestigious Sonia Skarlatos Public Service Award by the American Society of…

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Thank You for Honoring PPMD’s 30th Anniversary and Fighting for Every Future With Us

As I’ve reflected on the incredible journey of PPMD these past few weeks, I am overwhelmed with gratitude for each and every one of you who have supported us over three decades. From the founding…

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Catch Up on PPMD’s Inaugural PPMD Together Event in Cincinnati, Ohio

On April 19th and 20th, PPMD launched our brand new PPMD Together meeting series in Cincinnati, Ohio. The date and location held immense significance as we gathered to commemorate 30 years since the incorporation of…

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PPMD Celebrates 30th Anniversary with Launch of PPMD Together Meeting Series in Cincinnati, Ohio

PPMD is excited to mark its 30th anniversary at the launch of the PPMD Together meeting series, taking place April 19-20, 2024, in Cincinnati, Ohio. Founded three decades ago by a small group of passionate parents and grandparents…

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The Duchenne Registry Has a New Gene Therapy Survey!

Open The Duchenne Registry app and you will notice a new survey on Gene Therapy. If you do not see the Gene Therapy survey listed under the Activities section, please update your app. We recently…

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