Helpful Links

  • Icing Smiles
    Nonprofit organization that provides custom celebration cakes and other treats to families impacted by the critical illness of a child
  • Rare Science
    RARE Bear program, a grassroots community-driven outreach for kids with rare disease. Community volunteers create one-of-a-kind teddy bears for one-of-a-kind “rare” kids
  • Sweet Nectar Society
    Mission to provide comfort and love to families of children who are affected by serious illness, disability or injury through our photography and community outreach programs

Looking for state-specific resources? Check out our state-specific page

What resources would you like to add or update?
Email your suggestions to!

While Parent Project Muscular Dystrophy (PPMD) strives to make the information on this website as timely and accurate as possible, PPMD makes no claims, promises, or guarantees about the accuracy, completeness, or adequacy of the contents of this site, and expressly disclaims liability for errors and omissions in the contents of this site. Reference in this site does not constitute endorsement or recommendation by PPMD. Click here to review PPMD’s policy on corporate support.