The burden of cost borne by families affected by Duchenne muscular dystrophy can be great. Understanding private insurance coverage can help reduce the financial costs. Choosing the best plan to fit your family’s needs and learning what is covered and to what extent are first steps in the process. Additional areas of interest include the process for appeals such as challenging denials and mediation and state consumer protection agencies.

Understanding Health Insurance Options

Assistance with Navigating Insurance

  • PPMD’s Insurance Access and Coverage Center
    PPMD has assembled resources that will help families and medical providers at each stage of the healthcare access process. Included in our Insurance Access and Coverage Center are resources aimed at guiding you through this complex process – complete with sample letters and links to relevant publications and other resources.
  • Duchenne Family Assistance Program
    This program is a partnership between Little Hercules Foundation and Team Joseph. Through their Duchenne Family Assistance Program, Little Hercules Foundation provides case management services to patients and caregivers who have been denied access to treatments, clinical care, equipment, and social services. Team Joseph provides financial assistance for families procuring necessary medical equipment, travel assistance for those who travel long distances for expert care or clinical trial screening/visits, and support to attend educational meetings and conferences for those wishing to better understand Duchenne, standards of care, and the therapeutic landscape.

Private Health Insurance

Public Health Insurance


Looking for state-specific resources? Check out our state-specific page

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