April 7, 2020

Introducing PPMD’s Genetic Counselor Office Hours!

Introducing PPMD’s Genetic Counselor Office Hours! We are making it easier than ever before to connect with the genetic counselors at PPMD’s Duchenne Registry. The genetic counselors at The Duchenne Registry are board-certified and have…

Learn More

April 7, 2020

Astellas Shares Update on COVID-19 and Clinical Trials

Astellas Pharma has shared an update on clinical trial status and COVID-19. Read the Announcement from Astellas Astellas Corporate Position on COVID-19 and Clinical Trials In an effort to help ensure patient safety and alleviate…

Learn More

April 6, 2020

91 Members of Congress Send Letter of Strong Support for Duchenne Priorities & Funding for Next Year’s Budget

As a result of 123 meetings with Members of Congress in Washington DC, and over 2,500 action alert emails sent by this community, we are pleased to report a very successful outcome for the Duchenne Fiscal Year 2021 (FY21)…

Learn More

April 6, 2020

Audentes Therapeutics Shares Community Update on Duchenne Program & COVID-19

Audentes Therapeutics has shared an update with the community regarding their Duchenne program and COVID-19. Read the Update from Audentes Dear Duchenne Patient Leaders, On behalf of the team at Audentes, we hope that you…

Learn More

April 3, 2020

WATCH: Family Friday – Staying Active with Physical Therapy & Your DuchenneDaily20

Family Friday: Staying Active with Physical Therapy & Your DuchenneDaily20 For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching…

Learn More

April 2, 2020

WATCH: COVID-19 & Adults with Duchenne

Webinar Recording: COVID-19 & Adults with Duchenne On April 1, 2020 PPMD hosted an interactive webinar focusing on the adult Duchenne population and their unique risks for COVID-19, featuring representation from across our network of…

Learn More

April 1, 2020

Santhera Shares Community Update on SIDEROS Trial & COVID-19

Santhera Pharmaceuticals has shared an update with the community regarding the SIDEROS clinical trial and their activities during the COVID-19 epidemic. Read the update from Santhera Dear Duchenne community, Much has changed in the world…

Learn More

April 1, 2020

Duchenne Research Needs You: Your Self-Quarantine Checklist

Your Self-Quarantine Checklist: 1. Clean the house 2. Organize the closets 3. Join The Duchenne Registry!   Downloading the Registry’s new smartphone app is much easier and more fun than cleaning house or organizing closets!…

Learn More

April 1, 2020

PPMD Announces First Dual Pediatric & Adult Certified Duchenne Care Center, Kennedy Krieger Institute

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the program’s second Adult Certified Duchenne Care Center and first dually-certified center, the clinic at Kennedy…

Learn More

March 30, 2020

WATCH: Family Friday – Homeschooling Hacks

Family Friday: Homeschooling Hacks For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss topics that…

Learn More