April 13, 2020

Sarepta Therapeutics Shares COVID-19 Resources

Sarepta Therapeutics has shared a new COVID-19 resource page on its website, along with a new video providing contact phone numbers for those whom may have questions about continuity of access to Sarepta sponsored clinical…

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April 10, 2020

PPMD Moves Date of 2020 Annual Conference to July 23-25

PPMD Moves Date of 2020 Annual Conference to July 23-25, 2020 In light of the ongoing uncertainty brought about by the COVID-19 pandemic, PPMD has decided to move the date of our 26th Annual Conference…

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April 10, 2020

Thank you for always being our strength

Thank you for always being our strength Re·sil·ience: (noun) the capacity to recover quickly from difficulties; strength. Our Duchenne community is the definition of resilience. And we have never had that resilience challenged like we…

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April 9, 2020

WATCH: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety

Webinar Recording: COVID-19, Social Distancing & Quarantine – Coping with Stress & Anxiety The stress brought on by self-isolation and social distancing during a pandemic can be challenging to manage, especially when so many of…

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April 9, 2020

End Duchenne Tour 2020: Virtual Tour Stop in Atlanta

End Duchenne Tour 2020: Virtual Tour Stop in Atlanta On the morning of March 14, the Duchenne community in and around Atlanta, GA, gathered for PPMD’s first virtual End Duchenne Tour Stop of the year….

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April 8, 2020

New Video Resource: What is Duchenne?

New Video Resource: What is Duchenne? PPMD is proud to unveil a short new educational video to help kids better understand what Duchenne is and how it may affect the way they play and interact…

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April 7, 2020

Introducing PPMD’s Genetic Counselor Office Hours!

Introducing PPMD’s Genetic Counselor Office Hours! We are making it easier than ever before to connect with the genetic counselors at PPMD’s Duchenne Registry. The genetic counselors at The Duchenne Registry are board-certified and have…

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April 7, 2020

Astellas Shares Update on COVID-19 and Clinical Trials

Astellas Pharma has shared an update on clinical trial status and COVID-19. Read the Announcement from Astellas Astellas Corporate Position on COVID-19 and Clinical Trials In an effort to help ensure patient safety and alleviate…

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April 6, 2020

91 Members of Congress Send Letter of Strong Support for Duchenne Priorities & Funding for Next Year’s Budget

As a result of 123 meetings with Members of Congress in Washington DC, and over 2,500 action alert emails sent by this community, we are pleased to report a very successful outcome for the Duchenne Fiscal Year 2021 (FY21)…

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April 6, 2020

Audentes Therapeutics Shares Community Update on Duchenne Program & COVID-19

Audentes Therapeutics has shared an update with the community regarding their Duchenne program and COVID-19. Read the Update from Audentes Dear Duchenne Patient Leaders, On behalf of the team at Audentes, we hope that you…

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