2026 PPMD Annual Conference Resources & Recordings
June 25-26, 2026 | Orlando, FL
Thank you to everyone who joined us in Orlando, FL for the 2026 Annual Conference! We already can’t wait to see you all next June in Dallas, TX! For now, check out sessions from this year’s conference available for replay and download.
Welcome to the 2026 Annual Conference
- Katherine Beaverson, MS
From Our Experts to Our Community: PPMD Care Meeting Highlights
- Brain & Behavior in Dystrophinopathy
Molly Colvin, PhD, ABPP-CN, Massachusetts General Hospital
- Obesity Workshop Overview
Jaclyn Tamaroff, MD, MSCI, Vanderbilt University Medical Center
- Exercise in Dystrophinopathy Workshop
Claudia Senesac, PT, PhD, PCS, University of Florida
- OPTIMIZE DMD Update
Nora Renthal, MD, PhD, Boston Children’s Hospital
- Dystrophinopathy Care Considerations Update
Rachel Schrader, MS, APRN, CPNP-PC
Download PDF
Beyond the Diagnosis: The Family Ripple Effect
- Natalie Truba, PhD, Nationwide Children’s Hospital (moderator)
- Colleen Labbadia, PPMD Parent Advocate
- Christopher Bennett, PPMD Parent Advocate
- Susan Samuelson, PPMD Grandparent Advocate
- Charlotte Perez, PPMD Sibling Advocate
Keynote Address
- Joel Wood, President & Co-Founder, Foundation to Eradicate Duchenne
The Heart of the Matter: A Cardiac Care Panel
- The Heart of the Matter: A Cardiac Care Panel
Linda Cripe, MD, Nationwide Children’s Hospital (moderator)
- 1st 1000 Action Registrants
Emily Hayes, MD, Nationwide Children’s Hospital
- Coming to Consensus
Carol Wittlieb-Weber, MD, Children’s Hospital of Philadephia
- To Image or Not to Image
Chet Villa, MD, Cincinnati Children’s Hospital
Cardiac Research Therapies: Investigational & Repurposed Progress
- Chet Villa, MD, Cincinnati Children’s Hospital
Download PDF - Aravindhan Veerapandiyan, MD, Arkansas Children’s Hospital
Download PDF - Ines Macias-Perez, PhD, Cumberland Pharmaceuticals
- Linda Marban, PhD, Capricor Therapeutics
- Vinny Jindal, Secretome Therapeutics
Gene Therapy: Today & Tomorrow
- Kevin Flanigan, MD, Nationwide Children’s Hospital
Download PDF - Omer Abdul Hamid, MD, Nemours Children’s Health
Download PDF - Aravindhan Veerapandiyan, MD, Arkansas Children’s Hospital
- Gary Owens, MS, Precision BioSciences
- Mahima Chojar, PharmD, Sarepta Therapeutics
- Mark Stahl, MD, PhD, Insmed
- Pat Gonzalez, PhD, Solid Bioscience
- Koji Takahashi, PhD, Regenxbio
Understanding The Brain & Behavior Across Life’s Stages
- Molly Colvin, PhD, Massachusetts General Hospital (Moderator)
- Rosanne Govaarts, PhD, Leiden University Medical Center
- Natalie Truba, PhD, Nationwide Children’s Hospital
Looking Ahead at Gene Therapy
- Stephen Chrzanowksi, MD, PhD, UMass Chan Medical School
- Omer Abdul Hamid, MD, Nemours Children’s Health
- Aravindhan Veerapandiyan, MD, Arkansas Children’s Hospital
Moving Advocacy Forward: Duchenne & Becker in Today’s World
- Lauren Stanford, Sr. Dir., Advocacy, PPMD
Download PDF
Exercise Throughout the Lifespan
- Megan Iammarino, PT, DPT, Nationwide Children’s Hospital (moderator)
- Claudia Senesac, PT, PhD, PCS, University of Florida
Download PDF - Scott Perrin, PPMD Board Member & Parent Advocate
- Erica Hill, PPMD Parent Advocate
- Adith Thumallapali, President, PPMD PAAC
Late Breaking News
- Pat Furlong, Founding President, PPMD
- Linda Marban, PhD, Capricor Therapeutics
The Sibling Experience
- Pat Moeschen, Advisor, PPMD Adult Advisory Committee
- Marcus Hill, Sibling Advocate
- Charlotte Perez, Sibling Advocate
- Charlotte Sapp, Sibling Advocate
- Sophie Ridolphi, Sibling Advocate
PPMD Funded Research
- Alison Barnard, DPT, PhD, University of Florida
Download PDF - Sarah Kim, PhD, University of Florida
Download PDF - Michelle Rengarajan, MD, PhD, Massachusetts General Hospital
Download PDF - Paul Kaplan, PhD, Tevard Biosciences
Download PDF
Resources for Approved Therapies Access
- Brian Denger, PPMD
- Jill Castle, MEd, Little Hercules Foundation
