PPMD’S ANNUAL CONFERENCE
The largest, most comprehensive annual, international conference focused entirely on Duchenne.
Each year nearly 700 families from around the world gather at our Annual Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.
This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.
Save the Date!
- 2021 PPMD Annual Conference
June 23-26, 2021
Registration will open mid-April
- 2022 PPMD Annual Conference
June 22-26, 2022
Apply for PPMD’s 2021 Newly Diagnosed Program
Once again, PPMD will be offering an amazing support program for newly diagnosed Duchenne families to attend our Annual Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2019.*
If your child has been diagnosed with Duchenne sometime after January 2019 and you have never attended a PPMD Annual Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please fill out our application.Learn More >
*PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. Any conference add-ons that may require a fee are not included in the scholarship.
Previous Annual Conference Booklets & Resources
- 2020 Virtual Annual Conference Booklet
- 2020 Virtual Annual Conference Hub
- 2019 Annual Conference Booklet
- 2018 Annual Conference Booklet
- 2017 Annual Conference Booklet
PPMD’s 2020 Virtual Annual Conference
WEDNESDAY, JULY 22 – SATURDAY, JULY 25
Welcome to PPMD’s 2020 Annual Conference – Virtual Edition! This is an extraordinary time for our global community, as we slowly begin re-emerging from the COVID-19 pandemic. During this time, our always resilient community continues to inspire and energize PPMD.
Though we can’t connect in person this year, there was no way PPMD could let the summer go without hosting our Annual Conference. So this year, we are gathering virtually! From Wednesday, July 22 – Saturday, July 25, we will be offering the kind of robust, informative agenda you have come to expect from PPMD over the last 25 years.
What can you expect from the Virtual Conference?
From clinical trial updates, to the latest advances in Duchenne care, to our work in Washington, D.C., and opportunities to engage with families across the country, this year’s Annual Conference will help you catch up on the incredible momentum still happening in our community while simultaneously reconnecting with old friends and making new ones. You will have access to leading researchers, scientists, physicians, clinicians, and therapists, just like always, and there will be numerous opportunities during the week of the meeting to connect with these experts virtually.
We’re also going to have some fun! The PPMD team is organizing a variety of social activities for the whole family so that your virtual conference has a few surprises, and some much needed laughs.
Take a look at what we have planned so far – a full schedule of events will be unveiled in the weeks to come. And we look forward to seeing you at PPMD’s 2020 Virtual Annual Conference!View the Agenda >
SPECIAL SESSIONS WITHIN THE VIRTUAL CONFERENCE
Newly Diagnosed Program
PPMD will be offering an amazing virtual support program for newly diagnosed Duchenne families as part of our Virtual Annual Conference. The Program will consist of a Virtual Meet & Greet with other families and some PPMD staff the week of June 22 (you will be assigned to one of the scheduled dates) as well as an interactive two-part Intro to Duchenne virtual session the evenings of July 9 and 10. You will receive admission to the full Virtual Annual Conference as well.
Teen & Adult Track
The Teen & Adult Track will include a virtual social and two closed sessions for teens and adults with Duchenne and Becker muscular dystrophy ages 14 and over. The closed sessions, planned and hosted by the PPMD Adult Advisory Committee, will discuss important topics including relationships and social networks, independent living, and various areas of adult care. Access to general sessions from our Virtual Annual Conference is included as well.
Teen & Adult Track programing is for ages 14 and up; individuals with Duchenne/Becker only.
One on One appointments with experts
During PPMD’s Virtual Annual Conference, you will be able to make one on one appointments with experts in Genetics and the Registry, Physical Therapy, School and Behavior Issues, and Parenting Guidance and Advice. A registration page for appointment times will be available soon.
Contact firstname.lastname@example.org if you have questions about PPMD’s Annual Conference.
Thank You To Our 2020 Virtual Annual Conference Sponsors
Newly Diagnosed Family Sponsors