February 16, 2023

An update about our team

I’m writing to share that Ryan Fischer is transitioning off our team next month as PPMD’s Chief Advocacy Officer. Ryan joined PPMD in 2004. During his initial interview, I mentioned that we were looking for…

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February 6, 2023

Race Athlete Spotlight: Lauren Casey

It takes a village in a Duchenne/Becker Family.  Lauren Casey is an aunt to two boys living with Becker muscular dystrophy and has joined the Race to End Duchenne in their honor.  She took on…

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January 12, 2023

Introducing PPMD Lighthouse Workshops: Let’s Navigate, Together.

Happy New Year friends. I hope this finds you greeting the start to 2023 rested and looking ahead with optimism and good energy. I am excited by many of the initiatives PPMD has in the…

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January 10, 2023

Your Registry Data at Work: More Complete Data Betters Our Understanding of Duchenne & Becker

In December, several team members of The Duchenne Registry attended the 2022 TREAT-NMD International Conference in Vancouver, Canada. The Registry has been a member of the TREAT-NMD neuromuscular network since we began collecting data in…

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January 10, 2023

Magical Miles & $300,000 Raised with the Race to End Duchenne at Walt Disney World Marathon Weekend

This past weekend, our team gathered at the most magical race weekend of the year – the Walt Disney World Marathon Weekend, presented by State Farm. And THIS is the magic of us! Our Race…

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January 5, 2023

Thank You for Helping Ensure Hearts Grow Stronger With Every Beat!

I am grateful for your generosity this year and excited to announce that we have surpassed our goal to provide support to PPMD’s Cardiac Initiative and commitment to ACTION, the Advanced Cardiac Therapies Improving Outcomes…

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January 3, 2023

Race Athlete Spotlight: Tammy Cate

With the 2023 Walt Disney World Marathon® Weekend presented by State Farm coming up this week, we’re featuring Tammy Cate who has been a member of the Race to End Duchenne team for over 10…

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December 27, 2022

Double Your Gift Today.

Being a twin brings with it a unique closeness that few are lucky enough to experience. Having a sibling with Duchenne adds an additional layer to the relationship that is unique as well. I love…

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December 21, 2022

Help Hearts Grow Stronger and have your gift MATCHED through 12/31!

My son Logan is 10 years old. He is sharp, bright and curious, and it’s amazing to me to watch his brain at work. He has never once let Duchenne slow him down mentally, however…

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December 15, 2022

Give Today to help my Heart Grow Stronger

I was diagnosed with Duchenne muscular dystrophy at three years old. It was the late 90’s and PPMD was just beginning to grow as an organization. We found Pat Furlong and through her were connected…

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