October 23, 2023

Join Us for the Fall PPMD Lighthouse Workshops!

We’re excited to announce the return of PPMD Lighthouse Workshops this fall! These workshops provide a safe and supportive space for primary caregivers, as well as spouses and partners of individuals with a Becker diagnosis,…

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October 19, 2023

Sam’s Night Has Another Record-Breaking Year, Raising Over $1,400,000 for PPMD

This year’s 18th annual Sam’s Night event, hosted by the Killian Family in Dallas, TX, set yet another fundraising event record for PPMD, bringing in more than $1,400,000! Sam’s Night (formerly Sam’s Family Fun Day)…

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October 6, 2023

Finding and Accepting Help

PPMD recently launched “Connect Community Chats” to provide an opportunity for families and individuals living with Duchenne to come together virtually in a small group to talk about important life topics. The most recent discussion…

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September 11, 2023

Duchenne Action Month: Ways to get involved with PPMD

We know that no one person, company, or organization will end Duchenne. That’s why we are grateful to all of our collaborators – individuals, organizations, and industry partners – who, by joining forces with PPMD,…

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August 29, 2023

Breaking barriers together, this Duchenne Action Month and every day

On September 7, we will once again join forces with Duchenne and Becker organizations, families, partners, and all those like minded individuals around the globe to commemorate World Duchenne Awareness Day. This year we acknowledge…

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August 10, 2023

A Story of Firsts

On a sunny day in June of 1984, the word “Duchenne” first entered my life. “Go home and love them.” Well intentioned advice from doctors who could offer no hope. Could direct us to little…

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August 2, 2023

PPMD Publishes 15 Year Registry Report 

PPMD is excited to announce the release of the 15 Year Registry Report. This report is the culmination of data provided by registrants in The Duchenne Registry, as well as collaborative work with expert clinicians…

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July 2, 2023

Catch up on what’s happening at PPMD’s 2023 Annual Conference: Day 3

The third and final day of PPMD’s 2023 Annual Conference kicked off with the much-anticipated Gene Therapy Town Hall. Buddy Cassidy opened the session by sharing his experience as a Patient Representative for the May…

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July 1, 2023

Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 2

If you are here at PPMD’s Annual Conference this year, you’ve likely seen a man with a camera running around snapping pictures. Rick Guidotti, photographer and Founder & CEO of Positive Exposure, delivered keynote remarks…

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June 30, 2023

Catch Up on What’s Happening at PPMD’s 2023 Annual Conference: Day 1

This year’s  Annual Conference brings together more than 1,000 families, researchers, clinicians, and industry partners from around the world for three days of informative and interactive sessions featuring the latest news in research, clinical trials,…

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