Have you been looking for a way to engage with the community more? Do you have a personal experience that you would like to share with the larger community or through federal and state advocacy efforts? Are you interested in serving as a mentor to others with Duchenne and/or Becker?
PPMD is seeking adult (ages 18 and older) members of our Duchenne and Becker community to serve on the PPMD Adult Advisory Committee (PAAC). Please consider lending your time, talent, and vision to paving our pathway forward.
About the PPMD Adult Advisory Committee (PAAC)
The PPMD Adult Advisory Committee (PAAC) is on a mission to elevate the lives of individuals living with Duchenne and Becker muscular dystrophy through advocacy, education, mentorship, and awareness. We represent the teen and adult voice of people living with Duchenne and Becker as an extension of Parent Project Muscular Dystrophy (PPMD).
PAAC Member Requirements
To be eligible to serve on the PAAC, members must be age 18 or older at the time of application and diagnosed with Duchenne or Becker muscular dystrophy, or have a diagnosis of being a Duchenne or Becker carrier. All PAAC members are asked to participate in monthly working Zoom meetings. In-person meetings are occasionally held in conjunction with PPMD’s Advocacy Conference in Washington, DC and PPMD’s Annual Conference each June. Meeting attendance by PAAC members is strongly encouraged either in-person or virtually, but not required for membership.
The time commitment for PAAC members is roughly 5 hours/month.
To Apply for PAAC Membership Consideration
- Complete and submit the 2024 PAAC Membership Application.
- Submit your resume through the Google form above, or email it to firstname.lastname@example.org
Both the 2024 PAAC Membership Application and resume submission must be completed by Monday, November 27th for your membership to be considered. Please note that inexperience will not disqualify your application.