December 31, 2023

Give by midnight to double your impact in the fight for every future

As we prepare for the ball to drop and the confetti to fall, I am struck by the significance that this will be PPMD’s 30th year, and find myself reflecting on the remarkable milestones achieved…

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December 30, 2023

Give Before Midnight Tomorrow. Fight for Every Future!

The days leading up to the New Year are always a time of reflection for me. Since 1994 when my mother founded PPMD, my life has been intertwined with the organization. As we head into…

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December 27, 2023

Your Gift to Support PPMD’s Gene Therapy Initiative Goes Twice as Far Now Through 12/31

My son Connor’s diagnosis of Duchenne turned my family’s life upside down. In order to prioritize Connor’s comfort and quality of life we moved from Chicago to Florida. We’ve changed jobs, schools, and care teams,…

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December 19, 2023

Support Every Future: Your Gift to PPMD Doubles Until December 31st

Many of you know as well as we do that receiving a diagnosis of Duchenne is both crushing and overwhelming. We received the diagnosis for both of our sons a little over two years ago…

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December 14, 2023

Your Gift MATCHED Through 12/31 When You Support PPMD’s Fight for Every Future

In 1992, I was diagnosed with Duchenne at two years old, significantly earlier than the typical diagnosis age of 6 or 7 at that time, due to a family history. In the 90’s, our understanding…

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December 7, 2023

Your Gift Today Funds PPMD’s Fight for Every Future

For over three decades, my life’s work has centered around scientific research aimed at making a positive impact on the lives of individuals living with Duchenne. I have witnessed breakthroughs as therapeutic options moved from…

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December 1, 2023

Empowering Carriers of Duchenne: New Carrier Publications Resource

Being a carrier of Duchenne can feel isolating and misunderstood, especially for those who manifest symptoms. Earlier this year, PPMD began holding monthly support meetings for manifesting carriers to talk through their experiences, raise awareness,…

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November 29, 2023

United Nations Officially Designates September 7 as World Duchenne Awareness Day

The United Nations has marked a momentous milestone for the global rare disease community by officially designating September 7th as World Duchenne Awareness Day, set to be observed annually from 2024. The adoption of the…

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November 28, 2023

Every donation made for #GivingTuesday will be DOUBLED

On this #GivingTuesday, let’s unite in the fight for the future of those living with Duchenne. Your donation today holds extraordinary power as we have a unique opportunity to DOUBLE its impact! The Alex Rezkalla…

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November 23, 2023

This Year, I Am Grateful for the Monumental Impact We’ve Made Together

Thanksgiving offers each of us a moment to reflect on all that we are grateful for. This year, I am filled with gratitude for the impact we have made on the Duchenne landscape these past…

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