PPMD’s Living Duchenne

A podcast bringing together community voices to talk about navigating the Duchenne experience.

PPMD created this podcast as an opportunity to take a deeper dive into topics that impact Duchenne patients and their families on a daily basis. In each episode, we will be joined by an expert and community member to discuss their perspectives, guidance, and wisdom about living Duchenne.

Now available on Apple Podcasts, Spotify, or wherever you get your podcasts!

Season One: Preparing Today for Independence Tomorrow

Our first season, Preparing Today for Independence Tomorrow, consists of four weekly episodes released during the month of September, hosted by PPMD’s Connect Coordinator Rachel Poysky, a Duchenne mom and PPMD South Texas Connect Coordinator. Each episode covers topics related to facilitating independence starting from a young age.

Season Two: Building Community, The Silver Lining of Duchenne

Our second season, Finding Community, the Silver Lining of Duchenne, consists of four weekly episodes released throughout the holiday season, hosted by Rachel Poysky, a Duchenne mom and PPMD South Texas Connect Coordinator. Each episode covers topics related to the importance of finding “your us” and building strength as a community.

Season 3: Putting the “We” in Wellness

In our third season, Putting the “We” in Wellness, our host, Rachel Poysky sits down with a new round of guests to talk about taking care of ourselves. How do we incorporate wellness practices–physical, mental, and emotional–into our intense and busy Duchenne family lives?

Season 4: Centering Women in the Duchenne Journey

Season 4 of our Living Duchenne podcast continues the dialogue started with the 2022 World Duchenne Awareness Day’s theme, “Women & Duchenne.” This season we bring together a number of perspectives from women living various aspects of the dystrophinopathy experience.

Please email podcast@parentprojectmd.org with any questions about current episodes or suggestions for future topics to be considered.