October 30, 2019

PPMD Launches Interactive Drug Development Pipeline

For over twenty five years, Parent Project Muscular Dystrophy has been committed to exploring and supporting innovative therapeutic possibilities. We take a cutting-edge approach to accelerate finding treatments that will end Duchenne for every single…

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October 24, 2019

PPMD Awards $148,000 in Grants to Improve Cardiac Function in Duchenne

Parent Project Muscular Dystrophy (PPMD) is excited to announce that Dr. Kan Hor from Nationwide Children’s Hospital and Dr. Dongsheng Duan from the University of Missouri received grants to further develop their research into potential…

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October 22, 2019

Reveragen Biopharma Receives NIH Ethics Grant to Return Data to Participants in Vamorolone Clinical Trials

The National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH) has awarded an ethics research grant to ReveraGen BioPharma to return patient-level and aggregate data to Duchenne patients and…

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October 22, 2019

WATCH: DYSTANCE 51, a Phase 2/3 Clinical Trial of Investigational Suvodirsen – Webinar Recording

Suvodirsen (formerly known as WVE-210201) is an investigational stereopure oligonucleotide being developed as a potential treatment for boys with Duchenne muscular dystrophy with mutations amenable to exon 51 skipping. Wave Life Sciences is a clinical-stage…

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October 21, 2019

Whataburger Customer Promotion for Coach To Cure MD Raises $89,807 to Benefit PPMD

We are so excited to announce that Whataburger’s first-event customer promotion to benefit PPMD raised $89,807! Whataburger partnered with Coach To Cure MD to run this promotion in the Dallas/Fort Worth area locations. “We are…

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October 21, 2019

Transitioning to a New Role – While Keeping My Arms Wrapped Around Duchenne

Over the last few weeks, I have spent many hours reflecting on just how privileged I have been to share this journey with so many of you, and have spent hours recounting highlights among these…

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October 17, 2019

PPMD Announces Arkansas Children’s Hospital as 28th Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Arkansas Children’s Hospital the 28th Certified Duchenne Care Center (CDCC). This expanding program of elite centers, created in 2014 as part of PPMD’s Certified Duchenne Care Center Program,…

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October 11, 2019

Meet the PPMD Care Team

For 25 years, care has been at the heart of PPMD’s mission to end Duchenne. Fast forward to today, the Certified Duchenne Care Center (CDCC) Program has identified more than 28 neuromuscular centers that are…

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October 11, 2019

Calling All Adults with Duchenne & Becker MD: Join the 2020 PPMD Adult Advisory Committee!

Been looking for a way to engage with the community a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts? Interested in serving as a…

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October 9, 2019

2020 Make Every Day Count Award Winner: Gretchen Brentner Egner

Race to End Duchenne and Team Danny are pleased to announce the winner of the 2020 Make Every Day Count Award: Gretchen Brentner Egner! The Make Every Day Count Award was started in 2019 to honor…

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