Blog

New Resource: COVID-19 & Duchenne Care Imperatives (Fact Sheet)

PPMD’s Care Team has created an easy-to-use fact sheet that provides high-level takeaways for the care of individuals with Duchenne and Becker muscular dystrophy during the COVID-19 pandemic, based on information from a recently published…

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End Duchenne Tour 2020: Virtual Tour Stop in Milwaukee

End Duchenne Tour 2020: Virtual Tour Stop in Milwaukee On Saturday, April 25, we spent the morning with the Duchenne community in and around Milwaukee, WI for another End Duchenne [Remote] Tour stop. Although the…

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WATCH: Making the Most of Your Telehealth Appointments

Webinar Recording: Making the Most of Your Telehealth Appointments During our May 6, 2020 interactive webinar on telehealth appointments, our guest panelists discussed what to expect, what questions to ask, and how to make the…

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Solid Biosciences Shares Update on SGT-001 Phase I/II Clinical Hold for IGNITE DMD Program

Solid Biosciences shared today that their IGNITE DMD Phase I/II clinical trial will remain on clinical hold. Solid will continue to work with the FDA to provide further data and analyses relating to their manufacturing…

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PPMD’s Annual Conference to Go Virtual this July

PPMD’s Annual Conference to Go Virtual this July PPMD has made the difficult decision to change the format of our Annual Conference this summer, previously set to be an in-person meeting in July in Arizona….

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WATCH: Family Friday – Managing Learning Challenges at Home

Family Friday: Managing Learning Challenges at Home For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to…

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NEW REPORT: COVID-19 & Duchenne/Becker Muscular Dystrophy

NEW REPORT: COVID-19 & Duchenne/Becker Muscular Dystrophy Since 2014, PPMD has been growing its network of Certified Duchenne Care Centers (CDCCs) with the goal of standardizing and optimizing patient care throughout the US and making…

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New Video: Meet The Duchenne Registry App!

New Video: Meet The Duchenne Registry App! Have you downloaded The Duchenne Registry app? Is your account updated? Now’s the time to join the world’s largest Duchenne-specific registry and be the first to learn about…

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WATCH: Access to Approved Therapies and Home Care

Webinar Recording: Access to Approved Therapies and Home Care During our interactive webinar on April 29, 2020, we discussed access to approved therapies and home health considerations in the midst of a pandemic. Speakers from…

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Italfarmaco Provides Update on Advanced-Stage Clinical Development Program with Givinostat in Duchenne

Good news from Italfarmaco! As discussed on our webinar last week, an Independent Data Monitoring Committee (IDMC) has recommended the continuation of their Phase 3 Givinostat trial, determining that the trial is not futile. They…

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