February 9, 2021

PPMD Receives $100,000 Award from Duchenne Research Fund to Address Neurobehavioral Issues in Duchenne

Parent Project Muscular Dystrophy (PPMD) is excited to announce sponsorship from the Duchenne Research Fund for an award totaling over $100,000. As part of PPMD’s new Brain Initiative, the award will support work in understanding…

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January 21, 2021

WATCH: PGTME Hosts Gene Therapy Lecture Series

As the Duchenne community enters the era of gene therapy, many new concepts, terms and issues arise, including those related to research design, patient autonomy, sibling and family involvement, fairness in access and the quality…

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January 19, 2021

PPMD Invests $1 Million in Satellos Bioscience to Support New Regenerative Medicine Technology

Parent Project Muscular Dystrophy is excited to announce a $1 million programmatic investment in Satellos Bioscience Inc. (Satellos) to support the development of a new regenerative medicine for the therapeutic treatment of Duchenne. Duchenne is…

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January 12, 2021

WATCH: PGTME Hosts Gene Therapy Lecture Series

As the Duchenne community enters the era of gene therapy, many new concepts, terms and issues arise, including those related to research design, patient autonomy, sibling and family involvement, fairness in access and the quality…

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January 7, 2021

PPMD Announces 2021 Certified Duchenne Care Center Inter-Institutional Collaboration Grant Program

Parent Project Muscular Dystrophy (PPMD) is pleased to announce the opportunity for members of our Certified Duchenne Care Center network to apply for a grant to support an inter-institutional collaborative project to focus on advancing…

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December 16, 2020

WATCH: Unlock Data. Unleash Breakthroughs. (Webinar Recording)

Earlier today, Pat Furlong and I had the privilege of hosting a conversation with ImagingDMD experts Glenn A. Walter, PhD and Krista Vandenborne, PhD. We discussed the ImagingDMD team’s groundbreaking MRI work to determine critical…

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December 14, 2020

PPMD Invests $1 Million in Satellos Bioscience to Support New Regenerative Medicine Technology

Parent Project Muscular Dystrophy is excited to announce a $1 million programmatic investment in Satellos Bioscience Inc. (Satellos) to support the development of a new regenerative medicine for the therapeutic treatment of Duchenne. Duchenne is…

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December 11, 2020

Have Your Gift Matched to Unlock Data and Unleash Breakthroughs

This time of year, we are all looking for the perfect gift for our loved ones, but one size doesn’t fit all. This reminds me of Duchenne, where one size doesn’t fit all either. While…

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December 10, 2020

The Duchenne Registry Celebrates One Year of Data Collection in our Smartphone App!

This year has been one for the record books for many reasons, but here at PPMD we are excited to celebrate one year of data collection in The Duchenne Registry’s new smartphone app platform! Our…

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December 9, 2020

What exactly is a “Duchenne Protein Map”?

One thing we all know about Duchenne is that no matter when you or your child was diagnosed, some days we wake up and find ourselves feeling like there is still so much we need…

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