July 14, 2020

Win a NEW Smartphone!

Win a NEW Smartphone! During PPMD’s Virtual Annual Conference in July, The Duchenne Registry will be giving away a brand new smartphone (iPhone or Android) to one lucky registrant! All you have to do is…

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June 30, 2020

Applications Open for PPMD and Duchenne UK $1 Million Joint Research Grant Call for Gene Therapy

PPMD is thrilled to announce our partnership with Duchenne UK to launch a joint 2020 Research Grant Call, inviting research proposals for submission and review. Up to $1 million (US) is committed to a project…

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June 2, 2020

Duchenne UK and PPMD Announce $1 Million Joint Research Grant Call for Gene Therapy

PPMD is thrilled to announce our partnership with Duchenne UK to launch a joint 2020 Research Grant Call, inviting research proposals for submission and review. Up to $1 million (US) is committed to a project…

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May 27, 2020

PPMD Certifies Children’s Health and UT Southwestern Medical Center

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Children’s Health in Dallas and UT Southwestern Medical Center (Children’s…

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May 1, 2020

New Video: Meet The Duchenne Registry App!

New Video: Meet The Duchenne Registry App! Have you downloaded The Duchenne Registry app? Is your account updated? Now’s the time to join the world’s largest Duchenne-specific registry and be the first to learn about…

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April 10, 2020

Thank you for always being our strength

Thank you for always being our strength Re·sil·ience: (noun) the capacity to recover quickly from difficulties; strength. Our Duchenne community is the definition of resilience. And we have never had that resilience challenged like we…

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April 7, 2020

Introducing PPMD’s Genetic Counselor Office Hours!

Introducing PPMD’s Genetic Counselor Office Hours! We are making it easier than ever before to connect with the genetic counselors at PPMD’s Duchenne Registry. The genetic counselors at The Duchenne Registry are board-certified and have…

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April 1, 2020

Duchenne Research Needs You: Your Self-Quarantine Checklist

Your Self-Quarantine Checklist: 1. Clean the house 2. Organize the closets 3. Join The Duchenne Registry!   Downloading the Registry’s new smartphone app is much easier and more fun than cleaning house or organizing closets!…

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April 1, 2020

PPMD Announces First Dual Pediatric & Adult Certified Duchenne Care Center, Kennedy Krieger Institute

Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the program’s second Adult Certified Duchenne Care Center and first dually-certified center, the clinic at Kennedy…

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March 3, 2020

PPMD’s Pat Furlong Presents at FNIH Biomarkers Consortium

Last month, PPMD’s Founding President & CEO Pat Furlong presented at the Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium, addressing the use of digital health technologies to improve therapeutic research and development….

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