Today Parent Project Muscular Dystrophy (PPMD) announced the expansion of our renowned Certified Duchenne Care Center Program (CDCCP) with the certification of the clinic at Akron Children’s Hospital (Akron Children’s) in Akron, Ohio.
Rachel Schrader, MS, APRN, CPNP-PC, PPMD’s Senior Vice President of Clinical Care says the certification of Akron Children’s is a welcome addition to the CDCC network in bringing optimal Duchenne care to the northeast Ohio region, where the hospital serves patients from northeast Ohio, western Pennsylvania, and northern West Virginia:
“The team at Akron has been supportive of the standardized Duchenne care and development of the CDCC network since its inception. This team has worked incredibly hard to create a program that meets the needs of their patients and families, and our requirements for certification. It is exciting to see the fruits of their labor. We’re so pleased to add Akron Children’s Hospital to our growing network. We look forward to a productive and long-lasting partnership with them.”
— Rachel Schrader, MS, APRN, CPNP-PC, PPMD’s Senior Vice President of Clinical Care
Akron Children’s Neuromuscular program is a comprehensive multidisciplinary program designed to meet the unique needs of patients living with Duchenne muscular dystrophy and other neuromuscular disorders. The hospital provides world class care to northeast Ohio by keeping up to date on the latest guidelines and recommendations for care, and bringing cutting edge therapies to patients.
Led by Drs. Kathryn Mosher and Ian Rossman, Akron Children’s started with a core set of team members including physiatry, neurology, and clinical therapies, then worked diligently to expand their program to include other disciplines within their clinic, requiring significant collaboration among multiple departments within the hospital.
“We are thrilled to partner with Parent Project Muscular Dystrophy in our ongoing commitment to provide high quality care to our patients living with Duchenne. It is an honor to be selected and we seek to continue to meet the high bar PPMD has set for its CDCC Program. We look forward to a long and fruitful relationship,”
— Dr. Kathryn Mosher
PPMD’s Certified Duchenne Care Center Program supports standardized, comprehensive care and services for all people living with Duchenne. Certification means centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes, and comply with standards in clinical care that were established by the CDC’s Care Considerations. As part of its ongoing mission to end Duchenne, PPMD continues to insist that all people with Duchenne receive comprehensive care.
To learn more about PPMD’s Certified Duchenne Care Center Program, visit PPMD’s website. Click here to learn more about the history of PPMD’s Certified Duchenne Care Center Program and to access PPMD’s first published article on the program.