Blog

Rewatch PPMD’s 2021 Virtual Annual Conference

Did You Miss PPMD’s 2021 Virtual Annual Conference? PPMD’s 2021 Virtual Annual Conference was incredible with close to 2,000 families, care providers, researchers, scientists, and industry partners joining us for four days of informative updates…

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PPMD Virtual Conference to Feature 5 Late-Breaking News Sessions

PPMD’s 2021 Virtual Annual Conference to Feature Five Late-Breaking News Sessions We are excited to share that five Industry Partners will be announcing newly released data to the Duchenne community for the first time during…

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PPMD’s Virtual Conference Hub is Live!

PPMD’s 2021 Virtual Annual Conference – Our Hub is Live! If you haven’t registered for PPMD’s 2021 Virtual Annual Conference — now’s the time to do so! Our Conference Hub is now open! This is your opportunity…

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Take Part in the Duchenne Steroid Patient Experience Survey

Patient experience data is a critical tool for advancing drug development in Duchenne and for regulatory decision making. Steroids have been part of care standards for over two decades, however, there is a lack of…

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PPMD’s 2021 Virtual Annual Conference Agenda – Now Available!

PPMD’s 2021 Virtual Annual Conference Agenda – Now Available! PPMD is excited to unveil our full agenda for the 2021 Virtual Annual Conference, June 23-26! Although we cannot be together in-person this summer, that’s not stopping…

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Dr. Mena Scavina Joins PPMD as Certified Duchenne Care Center Program Advisor

I am very excited to announce that Dr. Mena Scavina has joined us as our Certified Duchenne Care Center Program Advisor! While we have an amazing team at PPMD which includes a number of healthcare…

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Thank you for helping turn obstacles into possibilities!

Thank you to every person who donated over the past month to support PPMD’s Gene Therapy Initiative. Thanks to your generosity, we can continue answering the difficult questions we face when it comes to the…

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Only a few days left to have your gift to PPMD matched!

When I think about Gene Therapy, I think about the possibilities. I think about those who fight every day so that Gene Therapy may become a safe reality for many. I think about a future…

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Exciting News! Your gift will be Matched Dollar-for-Dollar up to $50,000

There is nothing ordinary about Duchenne. We all know that. Our Duchenne story started in the ER. At two years old, my middle son was involved in a serious accident and went into cardiac arrest….

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PPMD’s End Duchenne Tour turns 5!

In late 2015, we had a discussion at the PPMD office in Hackensack. Was it time to kick our local educational events up a notch? Have we certified enough centers to have a “home base”…

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