December 15, 2021

Help PPMD raise $400,000 to invest in the future of Duchenne research

I am humbled to be working in Duchenne research, where patients and families have been the relentless driving force behind the progress we’ve made so far. We have seen the Power of Us realized, as…

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December 15, 2021

Second Chance — Win a NEW Nintendo Switch OLED!

THANK YOU, Duchenne Registry participants! As you might have heard, The Duchenne Registry was thrilled to recently give away a Nintendo Switch OLED to a Duchenne Registry participant who completed all of their surveys. The…

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December 7, 2021

Join the Power of Us with your gift today

Preparing to begin a new year, I always become a little nostalgic. I think about the year ahead of me and about the many years that have passed. This year, I can’t help but think…

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November 29, 2021

Support PPMD Tomorrow, on #GivingTuesday

#GivingTuesday is a global generosity movement, bringing together the power of people and organizations to transform their communities and their world. 2021 has once again highlighted  the power of our Duchenne community. Although we came…

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November 24, 2021

This Thanksgiving I am grateful for you

The turkey is prepped, and we are ready to turn on the oven bright and early tomorrow. My emotions are always heightened  during the holidays, but this year it’s even more palpable. The holidays are…

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November 17, 2021

Win a NEW Nintendo Switch OLED!

For all of you gamers and parents of gamers, The Duchenne Registry is excited to announce we will be giving away a brand new, very hard to find, very fun to play Nintendo Switch OLED…

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November 6, 2021

Race Athlete Spotlight: Jessica Divin

This year, Jessica Divin ran the Chicago and NYC Marathon as part of the Race to End Duchenne team.  Her inspiration: her son, Ben. Meet Jessica Why did you choose to join the Race to…

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November 4, 2021

Genetic Counselor Awareness Day: Celebrating PPMD’s Certified Genetic Counselors

Today, on Genetic Counselor Awareness Day, we celebrate PPMD’s Certified Genetic Counselors, Ann Martin and Niki Armstrong – two incredibly supportive and essential assets to the Duchenne community. Ann and Niki are invaluable members of…

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November 3, 2021

Record-Breaking 16th Annual Sam’s Night Raises Over $760,000 for PPMD

After the Killian family set the bar high in 2020 with over $532,000 raised at their annual Sam’s Night event, they managed to top that at this year’s event.  The 16th annual Sam’s Night has…

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November 3, 2021

Race Athlete Spotlight: Ernie Bueno

This November, Ernie Bueno will be running the NYC Marathon for the third year as part of the Race to End Duchenne team. He does it all for his friend and inspiration, Sam. Meet Ernie…

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