May 31, 2022

Race Athlete Spotlight: Theresa Velykis

Running for her son, Jacob, Theresa Velykis immediately joined the Race to End Duchenne.  She joined the team at the United Airlines Rock n’ Roll DC Half Marathon in 2022! Meet Theresa Why did you…

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May 27, 2022

3 Amazing Keynotes Announced For PPMD’s 2022 Conference — Including YouTube Stars Shane & Hannah Burcaw!

Keynote Lineup Announced For PPMD’s 2022 Annual Conference! We are thrilled to announce our Keynote speaker lineup for PPMD’s 2022 Annual Conference, being held June 23-26 in Scottsdale, AZ (and virtually!). Alongside our already robust Conference…

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May 25, 2022

BIG NEWS! $500 Travel Reimbursement for PPMD’s Annual Conference Available Through Memorial Day!

Thanks to generous donations and sponsorships, PPMD is thrilled to announce that we are able to provide a $500 travel reimbursement opportunity to all Duchenne/Becker families attending PPMD’s 2022 Annual Conference, June 23-26 in Scottsdale,…

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May 18, 2022

2022 End Duchenne Tour Recap: Atlanta, GA

2022 End Duchenne Tour Recap: Atlanta, GA The PPMD team was excited to travel to Atlanta for our first in-person End Duchenne Tour stop since 2020. More than 30 people came together to hear about…

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May 18, 2022

Win a NEW Xbox Series X with PPMD’s Duchenne Registry!

Win a NEW Xbox Series X! For all of you gamers and parents of gamers, PPMD’s Duchenne Registry is excited to announce we will be giving away a brand new Xbox Series X to one…

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May 13, 2022

Sign up today! Virtual Race Series-Power of Us

Sign up today for the Race to End Duchenne Virtual Race Series-May 21, 2022 – June 19, 2022! The Power of Us is stronger than any one of us alone. Join us for the Race…

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May 5, 2022

Race Athlete Spotlight: Catalina Rodriguez

Catalina Rodriguez joined the Race to End Duchenne team and ran the runDisney Princess 5K in February of 2022.  With the support of her son and daughter, she finished with pride. Meet Catalina Why did…

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April 29, 2022

PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series

PPMD Brings Caregivers Together to Kick off The Power of Us Summit Series Today PPMD is excited to convene the first meeting in The Power of Us Summit Series, our series of mental wellness retreats…

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April 7, 2022

The Power of Us Summit Series: Sibling & Teen/Adult Registration Now Open

The Power of Us is stronger than any of us alone. Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize…

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April 3, 2022

PPMD’s 2022 Annual Conference: Knight Hacks Poster Contest

Thanks to the generosity of PTC Therapeutics and members of the community, PPMD has established Knight Hacks: Everyday Tips and Tricks for Families, in memory of Angela Knight. One of Angela Knight’s enduring legacies is…

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