February 13, 2020

Update from the 3rd Annual Duchenne Healthcare Professionals’ Summit

Moving Forward Together was the theme of PPMD’s 2020 Duchenne Healthcare Professionals’ Summit held late last month. It was an appropriate theme considering the audience of healthcare professionals in attendance who have consistently demonstrated their…

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December 20, 2019

WATCH: Better Todays. Stronger Tomorrows. – Webinar Recording

On December 19, 2019, PPMD had the privilege of hosting a conversation with Duchenne experts on the importance of optimal care in Duchenne, how care impacts every aspect of our mission to end Duchenne and our…

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December 20, 2019

Winter Safety & Bone Health

With the official start of winter quickly approaching and the icy weather already here, we want to remind your family about the importance of safety, and also what to do if and when accidents happen….

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December 12, 2019

FDA Authorizes First Test to Aid in Newborn Screening for Duchenne

Today, the FDA authorized the marketing of the first test to aid in newborn screening for Duchenne. As you know, PPMD has been leading the effort for newborn screening in Duchenne. In October, the first…

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November 13, 2019

PPMD Certifies Motol University Hospital in the Czech Republic

PPMD is thrilled that Motol University Hospital will be the second Global Certified Duchenne Care Center.  Together with the Parent Project Czech Republic advocacy group, Jana Haberlova and the team at Motol University Hospital are doing an…

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October 17, 2019

PPMD Announces Arkansas Children’s Hospital as 28th Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Arkansas Children’s Hospital the 28th Certified Duchenne Care Center (CDCC). This expanding program of elite centers, created in 2014 as part of PPMD’s Certified Duchenne Care Center Program,…

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October 11, 2019

Meet the PPMD Care Team

For 25 years, care has been at the heart of PPMD’s mission to end Duchenne. Fast forward to today, the Certified Duchenne Care Center (CDCC) Program has identified more than 28 neuromuscular centers that are…

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October 3, 2019

Updated Specifics of the 2019-2020 Influenza Vaccines

The flu virus is constantly changing, with new “models” of flu appearing each year. The Center for Disease Control and Prevention (CDC) looks at the strains of influenza that have affected Australia during their flu season, and…

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October 2, 2019

Can Girls Have Duchenne?

PPMD is often asked the question: Can girls have Duchenne? There are a number of Facebook groups focused on female carriers. Discussions and questions arise around why some female carriers of Duchenne have symptoms while…

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October 1, 2019

First Baby Tested Via Parent Project Muscular Dystrophy’s Newborn Screening Pilot

Today, our community’s collective efforts have led to an incredible milestone for PPMD’s Duchenne Newborn Screening Pilot in New York State. Today, the first babies are being SCREENED for Duchenne. This is a significant milestone…

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