Blog

Safety Preparedness Toolkit for People with Duchenne

If we have learned anything over the past year, it is that life is unpredictable. Most of us did not anticipate a global pandemic or record-breaking freezing temperatures in Texas leading to a power crisis….

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PPMD’s End Duchenne Tour turns 5!

In late 2015, we had a discussion at the PPMD office in Hackensack. Was it time to kick our local educational events up a notch? Have we certified enough centers to have a “home base”…

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Johnson & Johnson COVID-19 Vaccine Pause: What Does This Mean for the Duchenne Community?

Yesterday, April 13, 2021, the CDC and FDA issued a joint statement addressing the recently approved Johnson & Johnson (Janssen) (J&J) COVID-19 vaccine, recommending a pause in administration of doses. This pause is the result…

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Females with Dystrophinopathy: Publication of PPMD’s Pre-Conference Meeting Summary & Recommendations

Much has been explored about males living with Duchenne, but what about the many females who are living with symptoms (i.e., skeletal muscle weakness, cognitive issues and/or cardiomyopathy) of this diagnosis? In June of 2019,…

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PPMD Awards $450,000 to Collaborative Duchenne Muscular Dystrophy Care Projects

Parent Project Muscular Dystrophy (PPMD) is pleased to announce awards to three collaborative Certified Duchenne Care Center (CDCC) network projects totaling $450,000. Under PPMD’s 2021 CDCC Inter-Institutional Collaboration Grant Program, these grants will support the…

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Register Today for PPMD’s 2021 Annual Conference — Virtual Edition!

PPMD’s Annual Conference – Virtual Edition Registration is now open for PPMD’s 2021 Virtual Annual Conference! 2021 remains an extraordinary time for our global community. We are getting closer to safer days ahead and we want…

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PPMD’s Certified Duchenne Care Center Program – 2020 Impact & Progress

PPMD’s Certified Duchenne Care Center (CDCC) Program was developed to make comprehensive Duchenne care and services, provided in agreement with the CDC Care Considerations, available and accessible to as many families as possible, and to strengthen clinical trial…

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COVID-19 Vaccination & Duchenne: Understanding the new adenovirus-based vaccine (Janssen/J&J)

As vaccines become available to help protect against COVID-19, PPMD is here to help you find answers to questions you might have about them. Please visit PPMD’s COVID-19 Information Center for additional resources and submit…

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February 22, 2021

New Resource! Common Labs and What They Mean in Duchenne

A variety of laboratory tests are often obtained in the assessment and treatment of Duchenne, and those laboratory tests can be incredibly confusing and variable in nature. As such, PPMD has developed a new resource…

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February 17, 2021

New Resource! Safe & Unsafe Medications in Duchenne

Many years ago, PPMD developed a one-page resource of safe and unsafe medications in Duchenne. While many of those medications are now discussed in various related sections of our website, we recognize the need for…

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