Blog

PPMD’s Certified Duchenne Care Center Program – 2022 Impact & Progress

Every single person living with Duchenne deserves the best care possible. It is important that families know who is in charge of delivering the care they need and understand what centers are providing optimal, standardized…

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WATCH: Connect With the Experts – Bone Health in Duchenne (Webinar Recording)

Connect With the Experts – Bone Health in Duchenne PPMD recently hosted a webinar led by expert endocrinologists Dr. Leanne Ward (University of Ottawa), Dr. Janet Crane (Johns Hopkins) and Nadia Merchant (Children’s National) to…

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The Heart Is a Muscle Too: PPMD Convenes 80+ Professionals for 2023 Cardiac Care Workshop

PPMD Convenes 80+ Professionals for 2023 Cardiac Care Workshop Last week in New Orleans, PPMD held the 2023 Cardiac Care and Duchenne – Professionals Workshop, convening over 80 clinicians, researchers, and industry partners to continue…

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PPMD Announces Cardiac Care Workshop Report, Advancing Understanding of Heart Disease in Duchenne

The heart is a muscle too. And PPMD has been asking questions about the heart for many years: What do we know and what do we need to learn about heart disease (cardiomyopathy)? If treatments…

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Pat Furlong Advocates in Support of Adding Duchenne to the Ohio Newborn Screening Panel

On March 23, PPMD’s Founding President & CEO Pat Furlong addressed the Ohio House Finance Subcommittee on Health and Human Services in support of legislation that would add Duchenne to the Ohio Newborn Screening Panel….

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WATCH: PPMD, NORD and PQHE Present ‘Living with Duchenne Muscular Dystrophy in 2023’

PPMD, NORD and PQHE Present ‘Living with Duchenne Muscular Dystrophy in 2023’ PPMD and the National Organization for Rare Disorders (NORD) recently hosted a community webinar discussing the current and future landscape of Duchenne care…

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February 17, 2023

PPMD Announces Pediatric Certified Duchenne Care Center at Phoenix Children’s

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the clinic Phoenix Children’s, one of the nation’s fastest-growing pediatric healthcare systems. This addition…

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February 10, 2023

Update on PPMD’s Newborn Screening Efforts: ACHDNC Advises Additional Information Needed

With a robust therapeutic pipeline, regulatory infrastructure, and clinical care network and guidelines in place, PPMD has been building the infrastructure and preparing for the implementation of newborn screening for Duchenne for almost a decade….

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February 10, 2023

Update on PPMD’s Newborn Screening Efforts: ACHDNC Advises Additional Information Needed

With a robust therapeutic pipeline, regulatory infrastructure, and clinical care network and guidelines in place, PPMD has been building the infrastructure and preparing for the implementation of newborn screening for Duchenne for almost a decade….

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December 21, 2022

WATCH: Protect Your Lungs This Winter (Webinar Recording)

Connect With the Experts – Pulmonary Management in Winter Season As we embark into the winter season, it’s imperative that individuals with Duchenne and Becker muscular dystrophy are prepared to manage their pulmonary health and…

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