Everyday Tips & Tricks for Families
Inspired by Angela Knight, a PPMD advocate and Duchenne Mom who lost her battle with cancer in 2020, PPMD Knight Hacks is a one-stop-shop for all the everyday tips and tricks needed to make everyday life with Duchenne a little bit easier. Hacks have been gathered from the Duchenne and Becker community and featured on this hub.
Have your own idea? Submit your Knight Hack today!
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Recently Submitted Hacks
Avoid ear irritation from masks. When mask-wearing is required, sew buttons on the side of a hat to hold the mask in place and prevent...
- Submitted by: Cheryl Prior
Keep your pillow in place while in an adjustable bed. "When my grandson uses his hospital bed, his pillow can slip down too far or...
- Submitted by: Ken Wallace
Gaming with limited dexterity. Game easier with a vertical mouse that is easier to grip and hold. The control bar can be moved in all...
- Submitted by: Ethan Pyles
Managing school lunches with limited dexterity. These products are great for independence while at school. Snap tops are great instead of typical tupperware or ziplock...
- Submitted by: Brendan Labbadia
SUBMIT YOUR KNIGHT HACK
Have your own idea? Submit your Knight Hack today!
ABOUT KNIGHT HACKS
Thanks to the generosity of PTC Therapeutics and members of the community, PPMD has established PPMD Knight Hacks: Everyday Tips and Tricks for Families, in memory of Angela Knight.
One of Angela Knight’s enduring legacies is that she never let Duchenne stop her son Jack from doing everything he wanted in life. Whether it was creating travel adventures, finding accessible transportation when there seemed to be none, or setting Jack up for successful independent living in college, Angela always found a way to make things work.
Angela was loved by the PPMD community, and we hope her legacy lives on through Knight Hacks and every day actions taken by community members to support and lift each other up.
Disclaimer
PPMD makes no representation, warranty or endorsement, express or implied, as to any of the information, services, products or messages (collectively, the “Suggestions”) contained on this website or referenced on any other websites which may be accessed through a hyperlink on this website. In particular, these Suggestions are provided for convenience of reference only, have been forwarded by members of the PPMD community, and are not intended as an endorsement by PPMD of the Suggestions or, in the case of the linked websites, of the organization or individual operating the website or a warranty or endorsement of any type regarding the website or the Suggestions posted on or available from such website. PPMD does not receive any compensation for the placement of any of the Suggestions on this website or for the placement of any links on this website.
