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IMPORTANT CARE INFORMATION:
Care GuidelinesCARE GUIDELINES     Emergency Care InformationEMERGENCY CARE     Surgery & Anesthesia SURGERY & ANESTHESIA
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Emergency CareEmergency Care
If a person with Duchenne suddenly becomes sick or injured, it is important to have the following information with you.

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Diagnosis & Genetic TestingDiagnosis & Genetic Testing
Getting an early diagnosis is an important step so that you and your medical team can make plans for your child’s care.

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The Care TeamThe Care Team
We recommend a coordinated, multidisciplinary approach to care.

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MusclesMuscles
Duchenne and Becker cause a loss of muscle strength that gets worse over time.

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HeartHeart
The heart is a muscle too- and there are specific changes to the heart that doctors need to watch.

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LungsLung Muscles
People with Duchenne and Becker have weakness in the muscles around the lungs that help them breath.

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Learning & BehaviorLearning & Behavior
Many people with Duchenne and Becker have normal learning and behavior, but problems are more common.

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Diet, Nutrition, and SwallowingDiet, Nutrition, & Swallowing
Healthy diet and healthy weight are especially important for people with Duchenne and Becker muscular dystrophy.

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Bone & JointBone & Joint
Keep bones and joints as healthy as possible to help people with Duchenne and Becker stay active and comfortable.

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Growth & HormonesGrowth & Hormones
People who use corticosteroids often have hormone issues, especially short stature and delayed puberty.

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Physical TherapyPhysical Therapy
Special stretching can help keep people with Duchenne and Becker stay as active and flexible as possible.

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MobilityMobility
People with Duchenne and Becker muscular dystrophy need help getting around as they get older.

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SteroidsSteroids
Steroids (a type called glucocorticosteroids) are used to help maintain muscle strength.

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Supplements & MedicationsSupplements & Medications (other than steroids)
Some people with Duchenne and Becker use supplements and medications that are not proven, but might help.

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Surgery & AnesthesiaSurgery & Anesthesia
When people with Duchenne and Becker have general anesthesia, a number of serious problems may arise.

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VaccinationsVaccinations
Alterations to routine early childhood vaccines are recommended for people with Duchenne.

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Pain and DuchennePain
It is important to recognize and address pain when it occurs.

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Related links

Care Guidelines
Register with Parent Project Muscular Dystrophy

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