Blog

WATCH: Carrier Cardiac Care (Webinar Recording)

PPMD hosted a webinar on March 22, 2022 to discuss cardiac care for female carriers of Duchenne and Becker. Panelists discussed the importance of carrier health, learnings from the PPMD-sponsored carrier study at Nationwide Children’s…

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February 4, 2022

WATCH: FibroGen DMD Pamrevlumab Phase 3 Clinical Studies Highlight (Webinar Recording)

FibroGen joined PPMD for a webinar on February 2, 2022. During the webinar, FibroGen discussed the clinical rationale for the use of Pamrevlumab by highlighting its Phase 2 study in non-ambulatory participants with Duchenne and…

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November 18, 2021

WATCH: Connect with the Experts – Pulmonary Care (October 2021)

During this year’s PPMD Virtual Annual Conference, we hosted a panel titled: A Patient’s Take on Pulmonary Management. We received a large volume of questions during this live session, so many that we were only…

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November 9, 2021

WATCH: Pediatric COVID-19 Vaccination (ages 5-11) & Duchenne (Webinar Recording)

On November 5, 2021, PPMD invited Drs. Tim Cripe and Tim Franson back for another COVID-19 vaccine webinar to provide updates on the new pediatric approval and what it means for the Duchenne community. Our…

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October 18, 2021

WATCH: SRP-9001 Micro-Dystrophin Gene Therapy Clinical Update (Webinar Recording)

Last week, Parent Project Muscular Dystrophy was joined by Sarepta Therapeutics for a webinar to discuss the details of the EMBARK clinical trial (SRP-9001-301). If you missed the live event, the recording can be found below.*…

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September 29, 2021

WATCH: Connect with the Experts – Cardiac Care

Watch: Connect with the Experts – Cardiac Care Last week PPMD’s Rachel Schrader moderated a webinar with expert cardiologists to discuss important topics related to cardiac medications, imaging, and advanced cardiac care. PPMD recognizes families…

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WATCH: SRP-9001 Micro-Dystrophin Gene Therapy Clinical Update (Webinar Recording)

WATCH: SRP-9001 Micro-Dystrophin Gene Therapy Clinical Update Parent Project Muscular Dystrophy was joined by Sarepta Therapeutics for a webinar update on June 2, 2021. Sarepta was invited to present recent updates from their ongoing clinical…

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WATCH: Connect with the Experts – Navigating the College Campus with Duchenne

PPMD’s Rachel Schrader and Mena Scavina recently moderated a fantastic Connect with the Experts: Navigating the College Campus with Duchenne webinar. They led a dynamic conversation around what the college experience may look like for…

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WATCH: ASP0367 Development Program Update (Webinar Recording)

Astellas Pharma joined PPMD for a webinar on May 19, 2021 to provide an update on the company’s ASP0367 development program. If you missed the live event, the recording can be found below. …

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WATCH: Viltepso – A Treatment Option for Patients Amenable to Exon 53 Skipping (Webinar Recording)

NS Pharma joined PPMD for a webinar on April 22, 2021 to provide an update about VILTEPSO™, a treatment of Duchenne in patients who have a confirmed mutation of the DMD gene that is amenable to…

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