April 3, 2020

WATCH: Family Friday – Staying Active with Physical Therapy & Your DuchenneDaily20

Family Friday: Staying Active with Physical Therapy & Your DuchenneDaily20 For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching…

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April 2, 2020

WATCH: COVID-19 & Adults with Duchenne

Webinar Recording: COVID-19 & Adults with Duchenne On April 1, 2020 PPMD hosted an interactive webinar focusing on the adult Duchenne population and their unique risks for COVID-19, featuring representation from across our network of…

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March 30, 2020

WATCH: Family Friday – Homeschooling Hacks

Family Friday: Homeschooling Hacks For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss topics that…

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March 27, 2020

WATCH: COVID-19 & Medications – What is safe in Duchenne?

Webinar Recording: COVID-19 & Medications — What is Safe in Duchenne? On March 26, PPMD hosted a webinar: COVID-19 & Medications: What is Safe in Duchenne? We were joined by four Duchenne specialists from our…

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March 23, 2020

WATCH: Family Friday – Home Schedules & School

Webinar Recording: Family Friday – Home Schedules & School For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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March 19, 2020

WATCH: COVID-19 & Duchenne – What you need to know

Webinar Recording: COVID-19 & Duchenne – What you need to know Earlier today, PPMD hosted a webinar with experts from our Certified Duchenne Care Centers (CDCCs) to educate our community on the current state of COVID-19, as…

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March 6, 2020

WATCH: Teen & Young Adult Trial Participation in Duchenne – Industry & Community Perspectives – Webinar Recording

On Wednesday, March 4, 2020, Santhera Pharmaceuticals joined PPMD for a webinar to discuss teen and young adult clinical trial participation. We heard from Santhera about lessons learned by conducting one of the largest trials…

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March 4, 2020

WATCH: Connect with the Experts: Cardiac Care & Research – Webinar Recording

Last week, PPMD hosted the first quarterly Connect with the Experts webinar around cardiac care and research. Dr. Linda Cripe (Nationwide Children’s), Dr. Lee Sweeney (University of Florida), and PPMD’s Eric Camino (Director of Research…

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January 15, 2020

WATCH: Update on Investigational Suvodirsen in Duchenne Muscular Dystrophy – Webinar Recording

On December 20, 2019, Parent Project Muscular Dystrophy (PPMD) and World Duchenne Organization (WDO) hosted an informational webinar with the Wave Life Sciences team to discuss their decision to discontinue development of suvodirsen for patients…

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December 20, 2019

WATCH: Better Todays. Stronger Tomorrows. – Webinar Recording

On December 19, 2019, PPMD had the privilege of hosting a conversation with Duchenne experts on the importance of optimal care in Duchenne, how care impacts every aspect of our mission to end Duchenne and our…

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