March 6, 2020 / Clinical Trials,Webinars

WATCH: Teen & Young Adult Trial Participation in Duchenne – Industry & Community Perspectives – Webinar Recording

On Wednesday, March 4, 2020, Santhera Pharmaceuticals joined PPMD for a webinar to discuss teen and young adult clinical trial participation.

We heard from Santhera about lessons learned by conducting one of the largest trials in Duchenne. PPMD Adult Advisory Committee members and trial participants Colin Werth and Austin LeClair also joined us for an open discussion about their experiences. Hear why they choose to participate in trials, how they make trial participation possible with their daily lives, and guidance to other teens and young adults considering trial participation.


  • Rachel Schrader MS, APRN, CPNP-PC
    Senior Vice President, Clinical Care – PPMD
  • Amanda Wilkison, RN, BSN
    Manager, Clinical Care – PPMD


  • Jodi Wolff, PhD, MSSW
    Head of Patient Advocacy – U.S., Santhera Pharmaceuticals
  • Colin Werth
    PPMD Adult Advisory Committee
  • Austin LeClair
    PPMD Adult Advisory Committee

Watch the Recording



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