June 26, 2018

#PPMDConference: Live Stream the Latest Duchenne Research News and Updates

Research. There is a momentum in the Duchenne research pipeline, the likes of which we have never seen before. Join us at PPMD’s Annual Conference, Thursday, June 28 – Saturday, June 30 to find out…

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June 26, 2018

2018 #PPMDConference Live Stream: Care & Advocacy Updates You Won’t Want to Miss!

With PPMD’s Annual Conference quickly approaching, we wanted to make sure you are aware of the incredible care and advocacy content that will be covered while we are in Arizona this week! Care It’s at…

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June 25, 2018

PPMD’s Decode Duchenne Program Serves 1,000th Patient

PPMD is pleased to announce the 1,000th patient application to our Decode Duchenne program. Decode Duchenne is a nationwide program to assist individuals with Duchenne muscular dystrophy in accessing genetic testing, interpretation, and counseling. The…

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June 18, 2018

Join the 2018 #PPMDConference Live Stream!

Next week we will descend on Scottsdale, Arizona for PPMD’s 24thAnnual Conference! With our most expansive agenda to date, including presentations from dozens of researchers, clinicians, and industry partners, we wanted to make this year’s…

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June 15, 2018

Jumping Jack Events to End Duchenne Turns 15

For 15 years, the Knight family of Westminster, Colorado has been supporting PPMD’s mission by hosting their annual Jumping Jack Events every June for 15 years now! Named after their son, 17-year—old Jack Knight, Jumping Jack Events started as…

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June 13, 2018

End Duchenne Tour Recap: Birmingham, AL

PPMD was very happy to have the opportunity to meet the team from Children’s Hospital of Alabama and all of the families that came out to our End Duchenne Tour stop on June 6 in the…

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June 6, 2018

Join the Race to End Duchenne

We are thrilled to announce the launch of the new name and look for our endurance program, Race to End Duchenne. This new name reflects the dynamic nature this program has taken on over the…

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June 5, 2018

Race Athlete Spotlight: Catie Sims

Catie Sims met Garrett Sapp and his family several years ago when she decided to turn her love of running into a way to help others. Since then she has become part of the Sapp…

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May 12, 2018

End Duchenne Tour Recap: St. Paul, MN

On Saturday, April 28, PPMD had the pleasure of hosting the End Duchenne Tour in St. Paul, MN at Gillette Children’s Specialty Healthcare. This was our first tour visit to St. Paul and we are…

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May 10, 2018

PPMD’s 2018 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2018 Annual Conference in Scottsdale, AZ, June 28 – June 30, 2018! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

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