November 10, 2020

PPMD’s Ground-Breaking Effort: An Update After One Year of Our Newborn Screening Pilot for Duchenne

14,000 Babies Tested in Partnership with New York State and NBSTRN; Data Presented at Association of Public Health Laboratories Newborn Screening Virtual Symposium Parent Project Muscular Dystrophy (PPMD) today announced that our Newborn Screening Pilot…

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November 4, 2020

Connect with the Experts: Key Takeaways from PPMD’s Endocrine Series

In case you missed it, over the past three weeks PPMD’s SVP of Clinical Care, Rachel Schrader was joined by Duchenne endocrine experts and members of the PPMD Adult Advisory Committee (PAAC) to discuss important…

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November 4, 2020

WATCH: Connect with the Experts – Height and Weight (Endocrine Series)

The body’s endocrine system is made up of glands that produce hormones, which are chemical messengers. Examples are growth hormone (that tells your body when to start and stop growing) and testosterone (the male hormone…

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October 23, 2020

WATCH: Connect with the Experts – Delayed Puberty (Endocrine Series)

The body’s endocrine system is made up of glands that produce hormones, which are chemical messengers. Examples are growth hormone (that tells your body when to start and stop growing) and testosterone (the male hormone…

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October 20, 2020

WATCH: Connect with the Experts – Bone Health (Endocrine Series)

The body’s endocrine system is made up of glands that produce hormones, which are chemical messengers. Examples are growth hormone (that tells your body when to start and stop growing) and testosterone (the male hormone…

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October 14, 2020

Publication of Australian Consensus Statement for Powered Wheelchair Standing Devices in Duchenne

As many families know, getting a Powered Wheelchair Standing Device (PWSD) approved and covered by insurance can be a frustrating and exhausting task. Having the same issues in Australia, an international multidisciplinary panel of clinicians,…

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October 9, 2020

Connect with the Experts: Endocrine Issues in Duchenne

The body’s endocrine system is made up of glands that produce hormones, which are chemical messengers. Examples are growth hormone (that tells your body when to start and stop growing) and testosterone (the male hormone…

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October 6, 2020

First Results from PPMD/Nationwide Carrier Study – Evidence of Cardiomyopathy by Exercise & Cardiac MRI

For females living with dystrophinopathy (the spectrum of diseases caused by mutations in the DMD gene), the disorder has not been historically characterized effectively. To address this need, PPMD provided a grant to Nationwide Children’s…

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September 14, 2020

Resilience Is Strength: Thank You for Fueling Our Fight to End Duchenne

As we celebrate the resiliency of our community this week as part of Duchenne Action Month, I have been reflecting upon all that we continue to accomplish, even in this time that is anything but…

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September 10, 2020

2020/2021 Flu Season: Stay Safe, Informed, and Healthy

As flu season approaches, we want to help you and your family stay safe, healthy, and informed. New “models” of flu appear each year. The Center for Disease Control and Prevention (CDC) examines the influenza strains that…

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