COVID-19 Recommendations for the Duchenne Community
PPMD is in contact with the Centers for Disease Control (CDC) and monitoring for any specific recommendations pertinent to the Duchenne population. PPMD also continues to consult with physicians from many of our Certified Duchenne Care Centers to determine recommendations specific to the Duchenne population. Please bookmark this page and check back regularly as new information and resources become available.
Below are links to important resources, as well as a list of FAQs regarding COVID-19 and Duchenne. We consulted experts in our community for answers to some of the questions we have received.
Please continue to submit questions to firstname.lastname@example.org, so we can continue to adapt our resources to your concerns.
Consensus Statement Publication
PPMD is excited to share the publication of a consensus statement for the care of persons with Duchenne and Becker muscular dystrophy during the COVID-19 pandemic. This article is the result of a group of expert clinicians in our community, many representing Certified Duchenne Care Centers. The publication outlines consensus recommendations if a person with Duchenne or Becker were to be diagnosed with or suspected of infection with COVID-19, and guides physicians and caregivers on best practices for management and treatment.View the Report >
Care Imperatives Fact Sheet
PPMD has created an easy-to-use fact sheet that provides high-level takeaways for the care of individuals with Duchenne and Becker during the COVID-19 pandemic, based on information from the recently published article accepted to Muscle & Nerve. This article was the result of a group of expert clinicians in our community, many representing Certified Duchenne Care Centers. Please download and print this guide and share it with your family and medical team.Download Fact Sheet >