Carrier Care Providers

How should I build my medical care team?

It’s very important for dystrophinopathy carriers to build a supportive care team. This may include, but is not limited to: a neuromuscular specialist, cardiologist, genetic counselor, and a psychologist or psychiatrist. To help connect carriers with appropriate expertise, PPMD has compiled a nationwide list of specialists with experience in carrier care.

KU Medical Center – Kansas City, KS

• Providers:
  • Pradeep Mammen, MD (Cardiology)
• Phone Number: 913-588-3099

Nationwide Children’s Hospital – Columbus, OH

• Providers:
  • May Ling Mah, MD (Cardiology)
• Phone Number: 614-722-2530

Northwestern Medicine – Chicago, IL

• Providers:
  • Dominic Fullenkamp (Cardiology)
• Phone Number: 312-695-0829

Parkland Memorial Hospital – Dallas, TX

• Providers:
  • Shaida Khan (Neurology)
  • Megan Kelly, APRN (Cardiology)
• Phone Number: 489-419-7520

PennMedicine Duchenne and Becker Carrier Clinic – Philadelphia, PA

• Providers:
  • Teresa Wang, MD (Cardiology)
  • Lauren Elman, MD (Neurology)
• Phone Number: 215-615-0044

Stanford Medicine  – Palo Alto, CA

• Providers:
  • Matt Wheeler, MD (Cardiology)
• Phone Number: 650-736-7878

University of California, Davis – Davis, CA

• Providers:
  • Craig McDonald, MD (Rehabilitation Medicine)
  • Jonathan “Yoni” Dayan, MD (Cardiology)
• Phone Number: 800-2-UCDAVIS

University of Washington – Seattle, WA

• Providers:
  • Nassim Rad (Physical Medicine & Rehabilitation)
• Phone Number: 206-598-4295

Vanderbilt Health – Nashville, TN

• Providers:
  • John Wells, MD (Cardiology)
• Phone Number: 615-322-2318

VCU Health – Richmond, VA

• Providers:
  • Sangeeta Shah, MD (Cardiology)
  • Jessica Hallam, FNP (Cardiology)
  • Frank Raucci, MD (Cardiology)
• Phone Number: 804-628-4327

University of Washington – Seattle, WA

• Providers:
  • Nassim Rad (Physical Medicine & Rehabilitation)
• Phone Number: 206-598-4295