Family Friday: Advocating for Yourself in Research
Exploring, understanding, and making decisions about Duchenne research and clinical trials can be very overwhelming. During our June 12, 2020 Family Friday on Facebook Live, we were joined by Dr. Mena Scavina (Nemours Children’s) and Michael Lo Sapio (parent) to discuss navigating Duchenne research and clinical trials as well ways to advocate for your family.
EXPLORE APPROVED & POTENTIAL THERAPIES
Duchenne research continues to progress, with multiple therapies in clinical trial. Stay up-to-date on the latest progress of drug development in Duchenne.
CURRENT CLINICAL TRIALS
Learn about actively recruiting clinical trials and studies you or your child may qualify for.
CONSIDERING A CLINICAL TRIAL
If you are considering a clinical trial, we have resources available to help you decide whether or not clinical trial participation is right for you and your family.
JOIN THE DUCHENNE REGISTRY
Once you join The Duchenne Registry and complete your Medical Surveys, the Registry will let you know when you might be a good fit for research studies and clinical trials. Your anonymous Registry data is also shared with researchers to speed the development of new therapies.
PPMD’s VIRTUAL CONFERENCE
Registration is now open for PPMD’s 2020 Annual Conference Virtual Edition! Though we can’t connect in person this year, there was no way PPMD could let the summer go without hosting our Annual Conference. So this year, we are gathering virtually! From Wednesday, July 22 Saturday, July 25, we will be offering the kind of robust, informative agenda you have come to expect from PPMD over the last 25 years. Take a look at what we have planned so far and register for FREE today!
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