Resources

PPMD AND THE DUCHENNE REGISTRY

  • Learn more about PPMD
    Parent Project Muscular Dystrophy (PPMD) is the largest non-profit organization in the United States focused specifically on Duchenne and Becker muscular dystrophy. Learn more about our mission to End Duchenne.
  • Join The Duchenne Registry
    Join The Duchenne Registry, a patient-reported international registry for Duchenne and Becker muscular dystrophy. Share your data and you will become a citizen scientist by helping to advance research and treatments for Duchenne.

DECODE PROGRAM FORMS

SPECIMEN SHIPPING KIT REQUEST

GENETIC COUNSELING AND EDUCATIONAL RESOURCES

CLINICAL TRIALS

NEED HELP?

Contact a Decode Duchenne Genetic Counselor >

 

 

Decode Duchenne is administered by Parent Project Muscular Dystrophy and The Duchenne Registry. Decode Duchenne is sponsored by Sarepta Therapeutics and PTC Therapeutics. Click here to review PPMD’s policy on corporate support.