September 7th: World Duchenne Awareness Day
The World Duchenne Awareness Day global initiative, spearheaded by the World Duchenne Organization, aims to raise awareness about Duchenne and Becker muscular dystrophy and has gained historic significance with the United Nations’ official recognition of the day.
This year’s theme for World Duchenne Awareness Day is “Family: the Heart of Care,” emphasizing the role of family members for people living with Duchenne and Becker.
Celebrate With Us
Download the Family Activation Guide
Celebrate WDAD by sharing with @ParentProjectMD on social media as we highlight members of our community taking action in the fight to end Duchenne!
Family Activation GuideHashtags
- #WDAD2025
GIFs & Stickers
When you share your WDAD celebrations on Instagram stories, search for PPMD to use our fun PPMD GIFs and Stickers!
Profile Pictures, Cover Images & Frames
Help raise awareness on September 7th by adding our Facebook profile picture or cover image to show the world that you are part of the fight for every future!
- Download profile pictures here and here
- Download cover image
How Do You Raise Awareness?
There are a variety of simple and powerful actions you can take to help raise awareness and support PPMD’s work in the fight for every future. While we’ve listed a few ideas below — the sky’s the limit!
- Create a Facebook Fundraiser in honor of World Duchenne Awareness Day on September 7 to raise awareness & help fund our fight for every future!
- Wear your worst shirt on Bad Shirt Friday!
- Join the Race to End Duchenne as we raise awareness and critical funds to end Duchenne.
- Host a Coach To Cure MD tailgating or watch party while your favorite sports team plays on their Coach To Cure MD game day!
- Create your own DIY Fundraising to End Duchenne event. Fund the fight for every future your way and have fun encouraging your community to support you!
- Ask your state governor or town mayor to recognize World Duchenne Awareness Day on September 7 with a proclamation or have a local landmark building “GO RED” with lighting!
- Join and update your account in The Duchenne Registry.
- Download PPMD’s Back-to-School Resources to ensure a smooth start to the school year when reaching out to teachers and administrators about Duchenne.
- Restock your family’s supply of great PPMD merchandise so that you can raise awareness all month long!
This September 7th let’s all do something…
To help raise awareness.
To end Duchenne.
