PPMD wants to make sure that families within our Duchenne community are equipped with as many tools as possible to ensure a smooth start to the school year. Because it’s hard enough just to figure out the secret code to get through the front entrance, let alone to have to navigate considerations around IEPs (individualized education programs), accessibility, and what information to provide to whom about your child’s medical care. So, consider this your Back-To-School Survival Kit (at least related to Duchenne).
Information for Parents & Teachers
To better assist parents and teachers in providing a quality education for the student with Duchenne, PPMD has created Education Matters Guides for parents and teachers with the goal of optimizing the child’s, teen’s or adult’s experience in a learning environment. The guides cover everything from the basics of Duchenne and its progression to specific classroom accommodations organized by age group.
NEW! Download the recently updated Educational Matters for Parents and Teachers in 2020:
- Education Matters Volume 1: Diagnosis and Early Childhood (ages 2-9)
- Education Matters Volume 2: Late Childhood and Early Adolescence (ages 10-15)
- Education Matters Volume 3: Late Adolescence and Adulthood (ages 16+)
In addition, there are comprehensive resources available in the areas of Adaptive Physical Education and Learning & Behavior in Duchenne:
- Education Matters: Adaptive PE (written specifically for the physical education teacher)
- Education Matters: Learning and Behavior in Duchenne (written by James T. Poysky, PhD)
We also recommend that teachers familiarize themselves with learning and behavior issues children with Duchenne may exhibit.
IEP, 504 Plans, and Accommodation Considerations
- School presentation with IEP vs 504 Plan comparison (download)
- Potential School Accommodations for Consideration for a Student with Duchenne (download)
- WATCH: Navigating School – An Ongoing Adventure (PPMD’s 2015 Connect Conference)
Classroom Activities for Understanding Duchenne
Download our ‘Classroom Activities for Understanding Duchenne‘ packet to view age-appropriate classroom exercises that can be done either by parents or teachers to educate students about Duchenne and some of the challenges your child faces on a daily basis. They are easy and can be done in one class period or as part of a larger group gathering, such as an assembly. Involve your child as much as he/she is comfortable and in a way that reflects how you discuss Duchenne at home.
PPMD’s 2020 Back-To-School Webinar Series: In-Person and Virtual School Scenarios
As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help inform and empower families, we recently hosted a back-to-school webinar series tackling questions and concerns the community has about both in-person and virtual school scenarios. PPMD’s Care Team was joined by leading experts from our network of Certified Duchenne Care Centers, as well as families who, like you, are navigating this unprecedented time.Resources & Webinar Takeaways >
VIDEO: What is Duchenne? (ages 4-7)
This video is geared towards young kids to help educate them, their friends and siblings, and others close to the family about Duchenne, to help them better understand what Duchenne is and how it may affect the way they play and interact with friends and family.
VIDEO: BrainPop Animation (all ages)
PPMD also has age-appropriate downloadable books available to help children learn about Duchenne: