Attend a Lunch & Learn Session

Please register for PPMD’s Lunch and Learn Sessions below.

Lunch & Learn: Financial/Estate Planning with Leona Filis

Thursday, June 24 • 12:00 PM – 1:00 PM Eastern

Join PPMD’s Brian Denger with panelist and attorney Leona Filis to discuss navigating benefits and finances to plan for your/your child’s future living with Duchenne, including government benefits, SSI, Medicaid, waiver programs, SNT’s, parent’s wills, and Gen Z packets (POA/SDMA/HIPAA).

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Lunch & Learn: Duchenne Family Assistance Program

Thursday, June 24 • 1:30 PM – 2:30 PM Eastern

Little Hercules Foundation and Team Joseph formed the Duchenne Family Assistance Program (DFAP) in 2017, to provide an expanded set of resources for families in need. Little Hercules’ work includes guiding Duchenne families through the complex insurance and appeals processes of both public and private health insurers, and also includes guidance on financial resources (SSI, Medicaid waivers, etc.). Team Joseph leads the program arm that supports families directly with financial assistance and resources to purchase equipment, accessible ramps, transportation to clinic visits, vehicle modifications, and home modifications. Assistance is also available for educational opportunities, such as conferences. Join Brian Denger from PPMD who will lead a discussion with the team from DFAP to explore how families can tap into these much needed resources.

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Lunch & Learn: Casimir

Friday, June 25 • 12:00 PM – 1:00 PM Eastern

An educational discussion about how and why video assessments may help the Duchenne community and how video assessments may be more sensitive to the way patients move over a shorter amount of time than other assessments.

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Lunch & Learn: Siblings Information Panel for Parents

Saturday, June 26 • 12:00 PM – 1:00 PM Eastern

Having a sibling with Duchenne presents its own set of emotional challenges. Join parent Jill Castle as she moderates a panel of Duchenne siblings who will discuss what they’ve learned along the way, and share lessons learned with parents.

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